Bcg treatment
I have had 12 doses of BCG and will be having a further 3 in October.
Any one else out there who have been through BCG therapy.
I feel burnt out and get pain just before and after I pass water.
You didn't say how long the treatment lasted or if there was a rest period in the middle. I had ZERO issues with the BCG, but I was given only six doses in six weeks. The results were minimal so I moved on to try a different approach (low dose chemo).
thanks as always for sharing your experience. How are you doing? Laura, Moderator, BladderCancer.net
I had 12 doses of BCG after surgery .
First I had six then a wait for around 6 weeks before another 3 and then another wait and 3 more.
You said results were minimal but it’s a preventive treatment so cancer does not come back.
Did your come back ?
Thank you
for your supportive and informative comments. I'm sorry to hear about your diagnosis, but I am happy you have found this community so early on in your cancer journey. We and all of our community members are here for you to share our lived experiences and advice.
A member of our community has written about their experience adjusting to life with a neobladder. You can read their story here: https://bladdercancer.net/living/adjust-neobladder-incontinence
Additionally, another member of our community has provided their insight and experience on how they decided a neobladder was right for them. Their article can be found here: https://bladdercancer.net/living/decision-neobladder.
I hope this information is helpful to you. But please get back in touch if we can provide any more assistance or information, and to update us on your progress.
Wishing you the strength for what's ahead.
Phil, Moderator, BladderCancer.nethi. Have they told you they will remove your bladder? If so and you are considering a neobladder you may find this useful. https://bladdercancer.net/coping/neobladder Laura, Moderator, BladderCancer.net
here a fellow patient and member here, talks of their experience with side effects of BCG. https://bladdercancer.net/living/explaining-bcg Laura, Moderator, BladderCancer.net I have 1 more left.very little side effects.blood only once.
That is great to hear that you are at the end of your treatments and have minimal side effects. I hope that the treatment is successful for you. Please keep us updated on how you are doing. My best Linda Urbanski (moderator, Bladdercancer.net team member) that’s great to hear you are almost finished and your side effects have been minimal. Wishing you well. Laura, Moderator, BladderCancer.net
