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Bladder cancer

Was diagnosed with bladder cancer Sept. Had TURBT in October, the tumor was removed and I was told it was a rare Sarcomatoid cancer probably muscle invasive. November a CT scan that was negative except for small nodules on my lung. December went for lung nodule biopsy that came back positive for the same cancer as my bladder. Don’t know what to do. The treatment plan now is for 20 days of radiation to the bladder. Added now 3 treatments of immune therapy 3 weeks apart. The oncologist will then restage. Any thoughts?--

  1. I think that’s a lot to take in for you and will have come as a shock after the tumor being removed. I think it is positive that a treatment plan has been proposed. If you have any questions about these next steps, reach out to your medical team. I wish you the best of luck. Laura, Moderator, BladderCancer.net

    1. @Starr - Wow - you certainly have received a lot of difficult information in a very short period of time. It certainly sounds like your doctors are moving along quickly to try to rid you of this. I am not medically trained and cannot dispense advice in that manner but if you have doctors that you are confident with, that is very important. I am also sure that you are blindsided by all of this but know that many people get through the challenges of cancer and I am sending prayers for you to have successful treatments. My best. Linda ( moderator, Bladdercancer.net team member)

      1. I flew in from Florida in October to get care at Sloan Kettering and am now not sure of anything

      2. is there still information from that visit that needs clarified? Could you possibly arrange a follow up phone appointment, Laura, Moderator, BladderCancer.net

    2. @Starr, it probably seems like you've had a lot dropped on you all at once. The fact that you are experiencing cancer won't change. But learning as much as you can about your own diagnosis might help to elevate some of the helplessness you feel. The better you understand what is happening, the better you can advocate for yourself. I am pulling for you, praying that your treatments are successful, and that there is positive news at the restaging. Wishing you well! ~Jacqueline, Moderator (BladderCancer.net, Advocate)

      1. it is a very uncertain time for you and I know that will be difficult. Hopefully following the re-staging you know more how things stand and can work with the medical team to understand any appropriate next steps. Laura, Moderator, BladderCancer.net

      2. , I can only imagine what you're feeling. You are overwhelmed with many concerns, particularly dealing with this rare form of bladder cancer. Hang in there just the same. This is your community of warriors, here to celebrate your progress. ~Jacqueline, Moderator (BladderCancer.net, Advocate)

    3. - how are you doing now? I hope that you have completed treatment and that it was successful. Please keep us updated as to how you are. My best. Linda Urbanski ( moderator, Bladdercancer.net team member)

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