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Bladder Cancer NOT in bladder

I was diagnosed February 2021 with NMIBC. Had turbt to remove 4cm tumor. I had 5 does of BCG before I couldn't tolerate. Six month check showed no cancer! Next 6 month check showed NO cancer!, BUT, it had spread to six lymph nodes in my chest(so Regional). So now I had a completely clean bladder, am stage 4, and am under going chemo therapy, which isn't fun. Has anyone known of this situation...clean bladder, but cancer elsewhere at stage 4?

  1. hi. sorry to hear it has appeared again. I was stage 4 but mine was contained within the pelvic area. My bladder was removed. I am not medically trained but know it is possible to the best of my knowledge, for cancer to originate in an organ and spread but due to treatment original organ is clear. I hope the chemo goes ok and and does it’s job. Wishing you well. Laura, Moderator,

    1. @earl.randall - I am sorry to hear that you have cancer after having a clean scan. I wish you success with your chemo and hope that your side effects are minimal. Sending prayers your way. Linda Urbanski (moderator, team member)

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