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Blood in urine again .. has cancer come back

I am a 77 year old female and I was diagnosed with BC eighteen months ago twice i had a tumour T3 removed and then 6 weeks basic BCG treatments and I have had two maintenance doses of 3 was. Cystoscopy in March was good. But 10 days ago I felt uncomfortable so did a urine dip stick test and it showed blood.

I was devastated. Im having a cystoscopy on Friday but am desperate to know... can this happen between, but due to the BCG treatments and if the cancer is back will I automatically be sent for a bladder removal as it shows the BCG has not worked for me.

  1. so sorry to hear this. Unfortunately, we are not medically trained, and only your doctor will be able to accurately discuss this with you as he knows your entire case. However, just because you have a recurrence does not necessarily mean that BCG is not working for you. Bladder cancer has a high rate of recurrence, especially in those that retain their bladder. The last statistic I saw said 65%, but I've seen higher estimations as well. Whereas post RC, the recurrence rate drops to around 13%. It is not automatic that you will be sent directly for RC. In fact, it's probably pretty unlikely. Usually, patients are only directed towards RC when cancer has become muscle invasive unless the patient specifically asks about RC.

    My suggestion would just be to try and relax. Call the doctor's office tomorrow with your questions and concerns, and try to keep your mind occupied until your cystoscopy on Friday.

    Good luck. Let us know how it goes. ~Liz, Moderator

    1. that is probably just the way that you have your computer or device set up. You should not need to do that. If you send an email to contact@bladdercancer.net, they'll be able to put you in touch with the IT team to get assistance...that may take a little longer, but they'll be able to help. I'm really sorry you are having issues.

    2. screen shots would be helpful to them if you are able.

  2. Thank you Liz for your reply. I am aware folk on the forum have no medical training I was just hoping to hear the experiences of others. But from your reply and having read some of the links, I learned today that recurrence is not unusual. Thanks again for you prompt input.

    1. P. S. I am in the UK and I know that won't make a difference to recurrence etc but it could make a difference to the response of medics and protocols.

      1. You're welcome. Yes, recurrence, unfortunately, is common. You're right about possibly being a difference in the responses since you're in the UK. Maybe or @Nick Chadd will have some input on that. They are in the UK. ~Liz, Moderator

    2. @Angela A _ I agree with the proffered suggestions. Take a breath because until you have cystoscopy results and possibly more testing the information is limited. BC does come back and BCG does not work for everyone. Hoping for good results from your tests/cysto. Please let us know how things go and know that we are always here to support you. My best. Linda ( moderator, Bladdercancer.net team member)

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