24thAugust 2021 I had an RC and have had 2 clear scans .February 2022 I found myself back with that dreaded pain that I remember so well . My GP sent me for an MRI and the scan came back clear .
My pain got no better intact it got more intense . After a good few months of getting my GP to help with the pain (none of which worked) I ended up at my GP surgery because I sent pictures of my swollen tummy and I had developed a tumour on the outside of my tummy.
Immediately she put me on a2w
Week cancer pathway.
I was gutted and all I did was cry .I then received an appointment to see my urologist. I was told the tumours were all in my pelvis from an X-ray my gp sent me for . The word cancer was back in our lives .my consultant advised me that the cancer was in too many places for surgery and he discussed radio therapy for pain relief. I felt physically sick .
Ct contrast was ordered ,Bone scan ordered. Mean while I’m left crying in all this pain .my husband and I are like walking zombies we haven’t had a full nights sleep for months.
My GP rang and said the scan results were back and radiology have marked it suspicious ( what ever that means)
Meanwhile my pain is not under control.my poor husband has sat for hours on the bed with me whilst I’m crying due to the pain.
He’s had to take all of this time off work because I can’t even put my own underwear on.
My consultant told us once the results are in they will discuss treatment at MDT.
Phone call from the hospital to invite us to a meeting with a consultant we have never met . We decided we can’t wait 10 days for the results so we have booked a private appointment to get our results.
The medication still isn’t leaving me pain free .
I’ve lost 21 pound in weight can’t eat as I have no appetite.
We are literally at our wits end exhausted and very emotional I need to get a grip and fast