Hematuria after Cystoprostatectomy
Hello all, I am a 71 year old male with my bladder & prostate removed in July 2020. I am now considered a survivor. It was not easy journey at first but got better with education and time. Currently I am having blood in my urine 24/7. I initially had no bleeding but had to go on blood thinners. I have all kinds of CT scans and scopes. I was off blood thinners for 2 months but I still bled. I have stumped my Fox Chase Urologist/Oncologist, Hematologist/Oncologist, and my primary physician. I was hoping for some help from someone with a similar condition. The only thing I am confident with is the blood thinners are not the cause but they did exasperated the problem. Thank you in advance. Joe
Do you mean bright red urine or just brownish/pinkish? I'm 76 (77 next moth), had my surgery in March 2023 and have been dealing with similar issues for the past few months. But it's mostly dark urine, sometimes brown, other times pinkish. I may have 2 or 3 days with fairly clear urine but then it happens again, especially urine from my night bag. I'm on Eliquis and I know that's not the cause but it makes it worse. My stoma produces lots of mucus, sometimes really dark and smelly stuff. I have no other major symptoms but 2 recent urine cultures showed a lot of bacteria. I have been through 2 courses of antibiotics, 2 weeks each. Surgery team suggested I should see an ostomy nurse (I did) and then an ID doctor (I did). The NP is pretty good at taking urine samples right out of the stoma with a catheter, but prescribing some antibiotics was as far as she could go. The ID doctor I have been seeing clearly knows very little about stomas, she just ordered an urine culture and put me on different antibiotics. She suggested I talked to my surgery team (back to square one). I am due to get my follow up CT, chest X-ray and cytology next month. I wonder how many people out there besides you and I are going through similar issues. Regards, Jose E.
We have a few articles on the conditions separately but, unfortunately, not together, We do also have a prostate cancer site at: https://prostatecancer.net/
There might be some more information there for you, or at least a place to start. Above all, just know you are not alone! Let us know if there's anything else we can do to help from here! Keep on keepin' on, DPM
https://bladdercancer.net/symptoms/blood-urine
https://bladdercancer.net/living/diagnosis-cystectomySorry to hear you have a similar problem. The blood in the urine is usually dark red or slightly brown. It’s always there 24/7. After about 2 years of dealing with this problem I don’t think there is a solution. I was at Fox Chase in February of this year with my urologist oncologist for my yearly check up. I had all kinds of scans and scopes done with no definitive results. I got a second opinion from a local urologist. He agreed with my regular urologist. He told me he tried to surgically locate the source and couldn’t. So the bottom line is I’m going to have to bleed the rest of my life unless it gets really out of hand. My regular guy said we will just have to monitor my bleeding. Thanks for your input. Joe
