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Extreme Pain After Mitomycin

My daughter finished 6-weeks of mitomycin 2-weeks ago. She is experiencing excruciating pain urinating (75% of stream is fine but the last part is painful and burning). Her urine is bloody and "chunky". She has provided two urine samples and the Urologist has indicated they are normal. I was wondering if anyone has experienced this and for how long these symptoms will continue. She has seen a Pain Management doctor and takes Lyrica in the evenings but is still in a tremendous amount of pain. I appreciate anyone's insight.

  1. Hi thanks for reaching out. I wish your daughter was not going through this, and I am sure this is really hard for you as well. This sounds so uncomfortable for her. I was able to find this forum from one of our members who experienced something similar: https://bladdercancer.net/forums/ongoing-irritated-bladder-after-19-bcgs. I really hope your daughter can get the relief she deserves. Please keep us posted on how she is doing. Jill (Team Member)

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