Has anyone had their kidney removed due to bladder cancer?

hi there. I don’t have any personal experience but here is something shared by someone who did. Perhaps you could reach out to them? Wishing you well. https://bladdercancer.net/stories/i-have-what Laura, Moderator, BladderCancer.net

I had two separate cancers bladder and left kidney and ureter - had complete before Kidney and ureter removal. Several surgeries on reoccurring small bladder tumors and the bladder cancer metasticized in my lungs last year.

2020 I fell so bad I couldn't get up ,



Rushed in for a cystscopy TURBT Removing tumor and biopsies
Sent home with a bag to collect my bloody urine. 4 times that year
Stent in right ureter 4 times
Biopsies come back high-grade renal cell bladder cancer
also in ureter
Treatment BCG
eight BCG treatments made me so sick I thought I was going to die then a rest and then three more BCG treatments
Another cystoscope and biopsies again telling me that things are calm down and they see no cancer
that only lasted for three months another urogram More growths on the CT scan back in for another TURBT
I was BCG refractive, it did not work
go in for another cystoscope with biopsises another stent ..
Then we start chemotherapy, gecemibine , 6 treatments instilled in my bladder We wait three weeks go in another cystoscope with biopsies
now they see Which they did not see before
kidney cancer
right kidney cancer
Now my doctor wanted to remove everything kidney ,ureter ,bladder ,uterus, ovaries
Enough is enough
3 more specialist I went to and then one more specialist to finally came up with a good plan. all during covid
4 robotic surgery to remove my kidney and ureter .
my bladder cancer was 0 stage.. no invasions. it was saved by Dr. T
not going to play light of this the surgery was hell I thought I thought i was was gonna die but the outcome after 8 treatments of gecimibene/ docetaxel instilled in my bladder separately has proven to right now cure my bladder cancer
All the outlining parameters of my kidney were zero for any cancer cells that might have invaded . which they did not .
My doctor in Pennsylvania saved my bladder and basically save my life always get other opinions always read always investigate
look for the best treatments but kidney cancer only goes through the kidney wall and to the rest of your body . If you're lucky and your tumors you can have them abelated
it's not something to play .
My falling down and hurting myself saved me

I had 3 separate sites of bladder cancer. 3 surgeries to remove the tumors and then gcb treatments 3 times after all surgeries. 3 years ago I was told I have left side kidney cancer that was starting to move into the ureter. The kidney hand tube had to come out. I had sailed through 3 bladder surgeries so I thought there wouldn't be any major problems going after the kidney. I almost died. Doctor decided it would be best to treat with chemo first, the have the big surgery. I had my first if what was supposed to be 30 treatments, went into toxic shock, had 3 grand mall seizures that broke both my shoulders that needed to be replaced with metal,and nearly died before they could figure out what the hell happened. All within a week. I woke up 8 days later and had to stay in hospital a whole month while I learned to move my nearly paralyzed arms again. After a month they let me go home and recover. I lost 20 pounds real fast. 2 months later the kidney came out along with the ureter. I still couldn't move my arms yet. Trying to get up and out of bed every day was mindblowingly painful. I then had 13 staples through my bellybutton and I blew 3 hernias in the belly that turned into 1 big one that started to cut off my breathing. My belly button just had the staples out and they had to go right back in and cut through that scar where the pulled the kidney our and did a massive hernia repair with mesh. That was 2 years ago. I now have 3 nudules in my left lung they are watching. In the meantime, my sisters and other parts of my family were doing DNA testing for specific cancer markers. Come to find out all seven of my cancers are related to having Lynch syndrome which is a genetic family connection to all kinds of cancers. It blew them away it, it blew the doctors away, it blows me away. I skipped over so much. This really is the condensed version. I also had my gallbladder out because of this cancer syndrome, along with my uterus and an ovary. All separate surgeries at different times in my life. You know what? I have been through so much, I don't think anything scares me any more. Yes I will have more cancers, yes I will probably loose more organs. I ain't afraid. Not even a little bit. Y'all take care, and always keep up in your testings and screenings. @