Newly diagnosed

@old64horn - I am not a medical professional but it appears that your medical team is moving you along quickly to see exactly what treatment options you have. It was wise to not ignore the blood in your urine and find out a cause. I assume that you will see a urologist oncologist or similar with expertise in this area. I have. over the years of being on sites like this, learned that the treatment options vary. It is great that you are seeing someone so soon. And you have come to the right place for answers from those who have been or are currently being treated. I wish I could provide more help than just being supportive as my cancer was non invasive but I am sure that others will comment also. There are many of us out there who have gone through this cancer and made it to the other side cancer free. Please keep us updated on how you are doing and know that we are here for support always. My very best. Linda Urbanski ( moderator, Bladdercancer.net team member)

hi. I am glad you found us. We have a range of experience among us to share. I can’t give specific as I am not medically trained. I know there are a few others at least on here from Texas who may chime in. You may find this article a useful read https://bladdercancer.net/basics It is a good idea to write down any thoughts or questions as you have them. Then when you meet with your medical team, you can refer to this to get the information you need. Please let us know how you get on. Wishing you well. Laura, Moderator, BladderCancer.net

Thank you for your welcome message. I'm anxious to learn from those who have traveled this journey.

Thank you for your post. At this point, I can only share my experiences, share where I am in my current journey, and lift you up in prayer. I'm 58 years old and had TURBT procedure performed on 11/23/2022 (the day before Thanksgiving) to remove a non-invasive high-grade bladder cancer tumor. This past Tuesday, I had my first of six weekly mitomycin chemo treatments to help prevent recurrence; another cystoscopy to confirm that will be scheduled 2 months after the final treatment. This all started once I began to see blood in my urine in early September. I am reasonably healthy and have never smoked.


From what I've learned, the two most common treatments are a bladder resection (TURBT) followed by either BCG immunotherapy or Mitomycin chemotherapy infused locally into the bladder immediately after the procedure. The weekly follow-up includes six weeks of treatment or less frequent depending of varying factors.


The primary post-treatment side effect are temporary and include frequent urination, urgent urination, and a slight burning sensation while urinating (Tylenol and supplements bladder muscle relaxation meds can help with this).


Hope this helps. Please keep us posted of the status after your January appointment and I will be lifting you up in prayer.


Reggie