Long Story- First My Daughter, Then MeFirst off, my oldest daughter was diagnosed too late with Bladder Cancer in 2018. She passed away in May of 2019. In June of 2019 I experienced blood in my...Reactions0reactionsComments2 comments
Long Year with Bladder CancerMy symptoms appeared on 4/7/20, with blood in my urine. After tests and a biopsy, cancer was confirmed on 5/4. I decided on a study, with BCG and ALT803 (1 per...Reactions0reactionsComments5 comments
"It Runs In The Family"Not long after I had recovered from my radical cystectomy, the medical team at Emory University asked that I have a full genetic panel completed. My medical team was dumbfounded...Reactions0reactionsComments1 comments
Diagnosed with Bladder Cancer During the PandemicWe're highlighting people in the bladder cancer community. I talked to Nick from the UK about what it was like to receive his diagnosis and start treatments during the COVID-19...Reactions0reactionsComments2 comments
We Should Know About Bladder Cancer Before We Are DiagnosedAbout 83,730 people will hear they have bladder cancer this year. Why is it the first time we hear about bladder cancer is when we are diagnosed? I have wondered...Reactions0reactionsComments10 comments
Remembering Curtis GarbettWe are incredibly saddened to share that BladderCancer.net team member Curtis Garbett passed away on February 27, 2021. Curtis had been living with stage IV bladder cancer since he was...Reactions0reactionsComments4 comments
Navigating Year 2As we celebrated the start of a new year, I began looking ahead and trying to make a plan for year 2 of active cancer treatment. The routine of immunotherapy...Reactions0reactionsComments1 comments
Being Tested for Lynch SyndromeTowards the end of my treatment, I had a conversation with my oncologist about genetic testing. Due to my young age, they wanted me to be tested for Lynch Syndrome...Reactions0reactionsComments1 comments
Don’t Panic Until You KnowThe usual symptoms sent me to a urologist; blood in the urine, frequent and uncontrollable urination, painful urination. Dr did a cystoscopy and found three tumors in my bladder. I...Reactions0reactionsComments4 comments
Transitional Cell Carcinoma - Kidney & Urothelial (Bladder Cancer in Kidney)I'm a 74 year-old, healthy and active woman. Well, like so many others, my story began in December 2018 with, first, microscopic, then visible blood in my urine (no pain)...Reactions0reactionsComments10 comments
Radical Cystectomy and Bowel Issues Part 2: The ColonoscopyRead Part 1 about Shirley's ongoing bowel problems after radical cystectomy. After waiting over 3 weeks for my so-called "emergency" gastroenterology appointment to come through (due to COVID-19 delays), I...Reactions0reactionsComments5 comments
Don't Waste Today Looking BackwardThis is my 3rd (maybe 4th) attempt at writing this piece. I have put down several paragraphs only to highlight and delete it all. I know what I want to...Reactions0reactionsComments1 comments
Fighting Cancer TogetherAlmost exactly a year before my diagnosis, my mom called me on Sunday afternoon and delivered the worst news imaginable. “They found cancer.” She had been diagnosed with thyroid cancer...Reactions0reactionsComments1 comments
The Opportunity to Change Your Perspective on Bladder CancerBefore you read this, I would like to ask you to take a moment. Think about that moment when you realized you were experiencing symptoms. That moment when you received...Reactions0reactionsComments1 comments
Scary PET Scan Results: Is This the Start of the End?I am in disbelief! Let me explain why. I was diagnosed at 46 with small cell bladder cancer. The diagnosis was grim. I just turned 50 and had started to feel...Reactions0reactionsComments10 comments
Why Losing Hair Means So MuchMany types of cancer are associated with physical changes, ranging from surgery and reconstruction to weight loss or gain. Oftentimes, individuals confronting physical changes find these very distressing. Someone may...Reactions0reactionsComments1 comments
Let's Go SwimmingThis may be an odd topic as the temperatures are dropping in the northern hemisphere, but for me, the cold weather season is when I enjoy visiting my local indoor...Reactions0reactionsComments3 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with bladder cancer. New here? We invite you to explore...Reactions0reactionsComments0 comments
Finding Community: Helping Others with Bladder CancerWho would have thought that having cancer would change my life in a positive way? But it has. I am certainly not saying that I am happy I had cancer...Reactions0reactionsComments27 comments
Radical Cystectomy and Bowel Issues (Part 1)After having had your radical cystectomy surgery, the focus of attention soon comes to the subject of bowel movements. This is the case after most major surgeries because after having...Reactions0reactionsComments2 comments
