Life After Bladder Cancer: Grieving My Old SelfI was diagnosed with stage 4, muscle-invasive bladder cancer in the fall of 2017. In November 2017, I underwent a total pelvic exenteration (TPE) with an aim to cure the...Reactions0reactionsComments2 comments
The Drag and Delay to a Bladder Cancer DiagnosisFrom weeks to months to years, each bladder cancer diagnosis is unique. It feels like a long slog, regardless of the length of time. Curious about the process in this...Reactions0reactionsComments7 comments
No Evidence of DiseaseIt finally happened. Two years into treatment and I received the scan report I had been hoping for. The report read "no evidence of disease recurrence or progression". This means...Reactions0reactionsComments15 comments
World Bladder Cancer Patient Coalition SurveyIn March of 2020, I was invited to join the patient advisory board for the World Bladder Cancer Patient Coalition. The board consists of members across the globe, with various...Reactions0reactionsComments2 comments
For The Next MeWhen I first started patient advocacy I was told I needed to find my "why." My reason for advocacy is what would make my work genuine and ensure others would...Reactions0reactionsComments1 comments
Mom's Entry into this WorldI've heard many cancer survivors say that they remember exactly where they were or what they were doing when they found out they had cancer. I imagine this has to be...Reactions0reactionsComments5 comments
I Have Got This But Not Every Day!My name is Laura. I live with two stomas - a colostomy and a urostomy. A colostomy for the removal of feces and a urostomy for the removal of urine...Reactions0reactionsComments2 comments
Would I Thrive in Spring Like the Bulbs?Today my husband and I planted the bulbs in our pots in the garden which will bloom in spring. For many, this is a yearly activity which is probably just...Reactions0reactionsComments8 comments
Hematuria and Bladder CancerA bladder cancer diagnosis can come about in different ways. You may have symptoms that lead to testing. Your doctor may find signs during a routine exam. Other times, treating...Reactions0reactionsComments11 comments
Hiking with an OstomyThe weather has finally turned chilly and the leaves are putting on their best show of fall colors. With the great outdoors calling my name I decided to take back...Reactions0reactionsComments1 comments
How to Be a Bladder Cancer AdvocateI often talk to others in the bladder cancer communities and people are always curious how I became a bladder cancer advocate. The answer is a lot simpler than one...Reactions0reactionsComments2 comments
Ostomy HacksHaving lived with my urostomy for over two years I'm pretty confident in all aspects of ostomy life. My bag change routine is down to a science and nothing about...Reactions0reactionsComments7 comments
The Hidden Anxiety of Bladder Cancer SurveillanceI finally had my follow-up cystoscopy a month ago. Yes, it was about six months overdue. I wasn't nervous, at first. But the longer I went without an exam, the...Reactions0reactionsComments16 comments
Road Trip with an OstomyI love to travel and explore any chance I get, and even before COVID, this came in the form of long road trips. When air travel became more restricted and...Reactions0reactionsComments0 comments
Learning Your Urostomy: The Early Days Post-CystectomyI am just writing this after getting up this morning. My morning is probably very similar to anyone else's: having a shower, breakfast and as it is a weekday, getting...Reactions0reactionsComments0 comments
How Did I Get an "Old Man's" Cancer?Since the first diagnosis, the burning question has been, "How did I get this disease?" No, I do not smoke. No, I don't drink alcohol. No, I don't abuse drugs...Reactions0reactionsComments4 comments
Ask the Advocate: Living with a Urinary DiversionRecently we asked our BladderCancer.net advocates some questions around their pivotal decision to have a radical cystectomy and opt for a urinary diversion. It can be one of the most...Reactions0reactionsComments0 comments
Would I Get a Second Chance?This time of year is a difficult one for me. It is full of mixed emotions and a roller coaster of hours that became days. On the 29th of October...Reactions0reactionsComments5 comments
Affirmations and the Power of Positivity: Coming Out of the HoleI am going to start this by being brutally honest. I have struggled over the last year and a half with depression, low mood, and anxiety. I felt like I...Reactions0reactionsComments3 comments
Being Nominated for a WEGO Health AwardIn June, an email popped up with the subject line, "Congratulations, you've been nominated!" The first thing I thought was, nominated for what? Well, I was nominated in a category...Reactions0reactionsComments2 comments