Ostomy HacksHaving lived with my urostomy for over two years I'm pretty confident in all aspects of ostomy life. My bag change routine is down to a science and nothing about...reactions7comments
The Hidden Anxiety of Bladder Cancer SurveillanceI finally had my follow-up cystoscopy a month ago. Yes, it was about six months overdue. I wasn't nervous, at first. But the longer I went without an exam, the...reactions16comments
Road Trip with an OstomyI love to travel and explore any chance I get, and even before COVID, this came in the form of long road trips. When air travel became more restricted and...reactionscomments
Learning Your Urostomy: The Early Days Post-CystectomyI am just writing this after getting up this morning. My morning is probably very similar to anyone else's: having a shower, breakfast and as it is a weekday, getting...reactionscomments
How Did I Get an "Old Man's" Cancer?Since the first diagnosis, the burning question has been, "How did I get this disease?" No, I do not smoke. No, I don't drink alcohol. No, I don't abuse drugs...reactions4comments
Ask the Advocate: Living with a Urinary DiversionRecently we asked our BladderCancer.net advocates some questions around their pivotal decision to have a radical cystectomy and opt for a urinary diversion. It can be one of the most...reactionscomments
Would I Get a Second Chance?This time of year is a difficult one for me. It is full of mixed emotions and a roller coaster of hours that became days. On the 29th of October...reactions5comments
Affirmations and the Power of Positivity: Coming Out of the HoleI am going to start this by being brutally honest. I have struggled over the last year and a half with depression, low mood, and anxiety. I felt like I...reactions3comments
Being Nominated for a WEGO Health AwardIn June, an email popped up with the subject line, "Congratulations, you've been nominated!" The first thing I thought was, nominated for what? Well, I was nominated in a category...reactions2comments
Never Alone: the Unconditional Support of a CaregiverRecently I had my annual scope. Everything was routine. The same paperwork - ensuring all of my personal information was up to date. Going over my insurance, dotting all the...reactions2comments
Community Views: Radical Cystectomy and Quality of LifeA bladder cancer diagnosis comes with many life changes. As you process the diagnosis, you hear treatment options. One treatment is for a radical cystectomy, which is removal of the...reactions2comments
When Christmas Takes on a Whole New MeaningAsk anyone I know, and they will tell you, I am just a big kid when it comes to Christmas. I have always loved Christmas, the magic of Christmas. I...reactionscomments
What Caregivers Can Depend on From MeHello! My name is Charles and I am sad and glad to be a part of this conversation. I want to formally introduce myself and let you know what you can...reactions3comments
Speaking at the Bladder Cancer RetreatBack in September, I had the absolute honor of speaking at the 2021 North Carolina Bladder Cancer Retreat. It was incredibly exciting, nerve-wracking, and it remains one of the most...reactions1comment
Myth Busting and Living with a Bag: Life after RC/ICDo you remember the date you were diagnosed with bladder cancer? Most hands will go up with that one! Who would ever think a doctor would recommend bladder removal as...reactions28comments
Holiday Travel with an OstomyMany of you may have just been traveling to visit family and friends for Thanksgiving or will be already thinking about the holidays and either hosting or spending it with...reactions6comments
Community Views: Did Your Bladder Cancer Diagnosis Surprise You?For many people with bladder cancer, the path to diagnosis and treatment does not always follow a straight line. Many people have signs and symptoms that signal something is wrong...reactions2comments
Coming Back AroundIn 2008 at age 55 I was diagnosed with stage IV Prostate Cancer, heart attack in 2010, bladder cancer diagnosed in 2015 stage 0, AFIB, A-flutter, cardioversions, ablations, P.A.D. with...reactions7comments
Chronic Pain and Living with it!Unless we are extremely fortunate, we all will have had to deal with various degrees of pain in our lives. Sometimes it can be short-lived and sharp, other times it...reactions2comments
Updates to UC and NMIBC Bladder Cancer TreatmentIn 2021, the U.S. Food and Drug Administration (FDA) made decisions on several new treatments for bladder cancer. This may help provide more options for people with bladder cancer. When...reactions1comment