4 Ways to Be a #GratefulPatient with Bladder CancerSeptember 7th was #GratefulPatient Day. Going through bladder cancer is, as my oncologist puts it, not all puppy dogs, rainbows, and unicorns. That's for darn sure, right?! Silver linings are...reactions5comments
Disturbed Sleep Research OpportunityArizona State University is seeking sleep-disturbed cancer patients to participate in a research study. The purpose of the research is to determine the effects of an 8-week smartphone-based health intervention...reactionscomments
World Hospice & Palliative Care Day 2020: Voices from the CommunityEach year, World Hospice and Palliative Care Day is observed in October. This year, October 10 will mark the day to celebrate and support hospice and palliative care around the...reactionscomments
Mucus: File Under "Things That Make You Go Ugh"If you have a neobladder, one of the new “normal” things the doctors will alert you to is “mucus” in your urine. My basic understanding is that because the neobladder...reactions15comments
The Benefits of TherapyI realized while reading my initial article on finding a therapist that I may have missed a few important talking points. We live in a time where medication and physical...reactionscomments
Grating Phrases and Jargon That Confuse (and Sometimes Demoralize) PatientsI was a caregiver for a year to a spouse with advanced bladder cancer. In the six years since his death, I have worked as a bladder cancer patient advocate...reactionscomments
Bladder Cancer Comic: Rescheduling My CystoscopyMany routine bladder cancer check-up appointments were delayed or canceled altogether this year due to COVID-19. For some, the time made them more anxious and worried about a recurrence. Others...reactionscomments
How Does the Care Team Treat the Caregiver?Cancer caregivers are often described — in brochures or panel discussions – as selfless. Friends, family, and providers have a tendency put them on a pedestal. In my experience, though...reactionscomments
My Urologist RetiredIn early 2006, I walked into Dr. Unni’s office for the first time. I had never seen a urologist, never passed blood in my urine. Never had any serious health...reactionscomments
Things I Wish I Knew Before Surgery: Preparing for a CystectomyAfter you and your medical team have determined that a radical cystectomy (RC) and ileal conduit (IC) is your best bladder cancer treatment option, preparation is invaluable. Having a surgery such...reactionscomments
Inching Towards a World With Fewer CystoscopiesAs a diagnostic tool to confirm or rule out bladder cancer, the cystoscopy (along with cytology urine tests) have long been considered the gold standard. But cystoscopies are uncomfortable at...reactions3comments
Beating Brain FogYou may have heard of “chemo brain,” but cancer-related brain fog is not limited to those who have experienced chemotherapy. So, what do we mean when we cancer patients say...reactionscomments
What is PD-L1 and Why Should I Be Tested for It?With the arrival of new cancer drugs that act in specialized ways or target things like the immune system, it’s helpful to know whether your cancer might respond to a...reactions1comment
Describing the Worst Days With Chronic PainIn September of 2019, Health Union (the parent company of BladderCancer.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...reactionscomments
The Similarities Between Bladder Cancer and COVID-19An illness that kills some and is a nuisance illness for others. An experience that disrupts life as we knew it. A highly unpredictable disease that seems arbitrary in its...reactions1comment
Stolen Valor: Feeling Like a Cancer ImpostorStolen valor is the term for some nimrod who has never served his country and puts on a costume of a military nature with phony ribbons and citations. I use...reactions9comments
2 Easy Recipes to Get You Excited About Healthy EatingIn my first article, I offered some ideas to help you start on the path to healthy (fresh) eating. That article addressed the numerous reasons we already know such as...reactions1comment
Navigating Medicare & Medicare Advantage Plans With Bladder CancerI read a distressing story about a bladder cancer patient that got me curious about Medicare and the unintended consequences of choosing a certain plan. In February, the New York...reactions7comments
Building Our Support Teams: You Are Not AloneI clearly remember the day I was given a diagnosis of bladder cancer, a type of cancer I had never hear of. I soon discovered that bladder cancer was not...reactionscomments
Infographic: Pain Management Treatment and CareIn September of 2019, Health Union (the parent company of BladderCancer.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...reactionscomments