Things I Wish I Knew Before Surgery: Preparing for a CystectomyAfter you and your medical team have determined that a radical cystectomy (RC) and ileal conduit (IC) is your best bladder cancer treatment option, preparation is invaluable. Having a surgery such...Reactions0reactionsComments0 comments
Inching Towards a World With Fewer CystoscopiesAs a diagnostic tool to confirm or rule out bladder cancer, the cystoscopy (along with cytology urine tests) have long been considered the gold standard. But cystoscopies are uncomfortable at...Reactions0reactionsComments3 comments
Beating Brain FogYou may have heard of “chemo brain,” but cancer-related brain fog is not limited to those who have experienced chemotherapy. So, what do we mean when we cancer patients say...Reactions0reactionsComments0 comments
What is PD-L1 and Why Should I Be Tested for It?With the arrival of new cancer drugs that act in specialized ways or target things like the immune system, it’s helpful to know whether your cancer might respond to a...Reactions0reactionsComments1 comments
Describing the Worst Days With Chronic PainIn September of 2019, Health Union (the parent company of BladderCancer.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...Reactions0reactionsComments0 comments
The Similarities Between Bladder Cancer and COVID-19An illness that kills some and is a nuisance illness for others. An experience that disrupts life as we knew it. A highly unpredictable disease that seems arbitrary in its...Reactions0reactionsComments1 comments
Stolen Valor: Feeling Like a Cancer ImpostorStolen valor is the term for some nimrod who has never served his country and puts on a costume of a military nature with phony ribbons and citations. I use...Reactions0reactionsComments9 comments
2 Easy Recipes to Get You Excited About Healthy EatingIn my first article, I offered some ideas to help you start on the path to healthy (fresh) eating. That article addressed the numerous reasons we already know such as...Reactions0reactionsComments1 comments
Navigating Medicare & Medicare Advantage Plans With Bladder CancerI read a distressing story about a bladder cancer patient that got me curious about Medicare and the unintended consequences of choosing a certain plan. In February, the New York...Reactions0reactionsComments7 comments
Building Our Support Teams: You Are Not AloneI clearly remember the day I was given a diagnosis of bladder cancer, a type of cancer I had never hear of. I soon discovered that bladder cancer was not...Reactions0reactionsComments0 comments
Infographic: Pain Management Treatment and CareIn September of 2019, Health Union (the parent company of BladderCancer.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...Reactions0reactionsComments0 comments
The Power of Sharing Your StoryHistorically, when a person was battling cancer, it was very hush-hush. It wasn't even discussed within the confines of the person's household, let alone with others outside the household. It...Reactions0reactionsComments2 comments
Creating a New "Tribe" Due to Bladder CancerEveryone in life has their own "tribe." You know, your group of people - friends and family - who love and support you through thick and thin. Those who actually...Reactions0reactionsComments1 comments
One Year Later: Living with an Ostomy and Stoma Care TipsWell, it's official: I have had my life-saving stoma for an entire year now. Within 2 weeks of my diagnosis, my oncologists and surgeons knew I needed to have my...Reactions0reactionsComments2 comments
Follow Your Intuition About a DoctorYour doctor — be it your urologist, medical oncologist, radiologist, or other specialist treating you for bladder cancer — is your partner. He or she is there to help you...Reactions0reactionsComments1 comments
During and After My R/IC Surgery: I Made it to the Finish LineMy surgery date for a radical cystectomy/ileal conduit (RC/IC) arrived quickly. The weeks prior were a flurry of appointments, pre-surgery testing, and keeping my mind occupied elsewhere. I still have not decided...Reactions0reactionsComments1 comments
Your Treatment Choices Are Your Own – and Others’ Are TheirsAs any cancer patient or caregiver can tell you, everyone has an opinion about how to treat your cancer. And many of those people will let you know what they...Reactions0reactionsComments5 comments
Reflecting on Four Years Since My DiagnosisOn August 9th, 2016, I went to the urologist to have a cystoscopy. This simple procedure permanently altered the course of my life. At 40 years old, I had experienced...Reactions0reactionsComments2 comments
Newly Diagnosed with Bladder Cancer? Build Your Care TeamI think good medical and emotional support for a bladder cancer patient comes from three sources: All three are important to fully support a patient and family facing bladder cancer...Reactions0reactionsComments0 comments
The Youngest in the RoomAs I sit in the waiting room of my cancer center, I look around and see the chairs spaced a perfect six feet apart. There are no visitors, and everyone’s...Reactions0reactionsComments2 comments