Caring for a Parent While Coping with Bladder CancerRead Part 1: Who Cares for the Caregiver? I was exhausted and run-down. I hadn’t stopped to slow down in all the time my mum was in the hospital. If...Reactions0reactionsComments2 comments
A Look at the Services Virtual Care OffersTelehealth or virtual care can be used to access many different types of health services. To get started, talk to your doctor to find out which virtual services are right...Reactions0reactionsComments0 comments
Preparing for a Virtual Visit with Your DoctorVisiting your doctor online is a great way to get healthcare if you are not able to go in person. You can get medical advice, visual assessments, treatments, or update...Reactions0reactionsComments2 comments
Let’s Make Sure Bladder Cancer Is No Longer Referred to As “Uncommon”When my first husband, Ahmad, was diagnosed with bladder cancer (early stage in 2011 and then metastatic in 2013), time and again we heard comments like “oh I’ve never heard...Reactions0reactionsComments0 comments
My Experience as a Volunteer Firefighter and the Impact of Bladder CancerA huge part of the nation receives its fire protection from volunteers. In Newton County, Indiana, all of the firefighters are local citizens who give part of their time and...Reactions0reactionsComments1 comments
Understanding the BCG ShortageFor some time now, there has been a shortage of Bacille Calmette-Guerin (BCG). It is a drug that doctors prescribe to treat bladder cancer in its early stages. People with...Reactions0reactionsComments2 comments
Telehealth 101: How to Visit Your Doctor OnlineTelehealth is a virtual service that lets patients interact with a healthcare professional online. This lets doctors and patients connect without being in the same room, or even the same...Reactions0reactionsComments0 comments
Living with the Big 'C' & Coping with DeathsYou mourn those friends who die during the course of your life and your cancer journey, but there is that small part of your brain that questions, "Am I next?"...Reactions0reactionsComments0 comments
“You Don't Look Sick” & Other Things Not to Say to Cancer PatientsJust as you wouldn’t ask a woman on the street “When are you due?”, there are certain words that are better left unsaid. In the cancer community, there are questions...Reactions0reactionsComments0 comments
The Dizzying Array of Doctors for a Bladder Cancer PatientBefore my first husband had bladder cancer, I had very little direct experience with doctors who specialize in treating cancer (of any kind). I had a vague notion that the...Reactions0reactionsComments0 comments
Weird Symptoms and Documenting My ExperienceFor me, hindsight is 20/20. I can look back now and see some of the “weird” things I was experiencing as red flags that should have been checked out sooner...Reactions0reactionsComments1 comments
Choosing Happiness“The art of being happy lies in the power of extracting happiness from common things.” -Henry Ward Beecher I agree with the above quote. That said, I would exchange the...Reactions0reactionsComments2 comments
Who Cares for the Caregiver?These last 6 months have been filled with illnesses and stress. My mum hasn't been too well and has been in and out of hospital and care homes since October. She...Reactions0reactionsComments0 comments
Finding Your People: Bladder Cancer & Support SystemAt the time I was at my hospital, there was not one other soul being actively treated with bladder cancer. When I was told my diagnosis and what surgery I...Reactions0reactionsComments0 comments
Terms & Conditions for Compassion Blanket GiveawayOfficial Rules, Terms and Conditions for the Compassion Blanket Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED. The...Reactions0reactionsComments0 comments
The Emotional Impact of New Treatment DevelopmentsIt was just 5 years from the time my first husband died of bladder cancer in 2014 until 2019. It’s difficult to express just how dramatically the metastatic bladder cancer...Reactions0reactionsComments1 comments
Making Bladder Cancer Treatment DecisionsCancer treatment is a buffet of choices. Each one comes with a bounty of pros and cons. When I was diagnosed, my urologist talked to me about grade and staging...Reactions0reactionsComments0 comments
Take the Fatigue and Health Survey!The 2020 Fatigue and Health survey has now closed. Thank you for your interest! We are excited to share the results with you soon.Exhaustion, tiredness, weariness... fatigue. We know chronic...Reactions0reactionsComments0 comments
Using a Night Storage Urine BagWhen I had my urostomy surgery back at the end of 2017, I didn't know anyone who had a stoma. Everything was new to me, and I was very much...Reactions0reactionsComments2 comments
I Was Diagnosed with Bladder Cancer at 28Bladder cancer should typically target older white men who have smoked. Outside of that usual range, it still tends to be diagnosed in those much older. I have noticed in...Reactions0reactionsComments12 comments