Laura's Bladder Cancer Story: Working and Traveling with 2 StomasThe Editorial Team at BladderCancer.net is highlighting people in the bladder cancer community. To kick it off, we talked to Laura who shares her bladder cancer diagnosis story and her... By Editorial Team 5 min readBookmark for laterReactions 0 reactions Comments1 comments
What Is the Culture Surrounding Bladder Cancer?As I became more deeply involved in bladder cancer patient advocacy, I read and heard a lot about the culture surrounding breast cancer. A few decades ago, breast cancer was... By Renata Louwers3 min readBookmark for laterReactions 0 reactions Comments0 comments
Living with No Evidence of DiseaseWhat happens when you are told, "Congratulations, you have no evidence of disease!"? Of course, you are elated, relieved, happy, and perhaps a little overwhelmed and a bit confused. Terminal... By Anita Brown3 min readBookmark for laterReactions 0 reactions Comments0 comments
Fighting Through the Mental FogI drive a truck for a living. 12 to 14 hours a day, 6 days a week. I have been all over the country, but Newton County, Indiana has fog... By Mac Howard3 min readBookmark for laterReactions 0 reactions Comments6 comments
Your Questions? Answered! Hear From Bladder Cancer ResearchersInterested in hearing what experts have to say about bladder cancer treatments? We asked our Facebook community, "What questions do you have for a bladder cancer researcher?" After gathering your... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Speaking Out About the Unspoken: Sex After CystectomyBefore I had my radical cystectomy (bladder removal surgery) in January of 2017, I had an appointment with my doctor to discuss the procedure. Right at the very end of... By Shirley Norris3 min readBookmark for laterReactions 0 reactions Comments2 comments
COVID-19 Basics for the Immune-CompromisedFor those living with chronic health conditions or cancer, current news about the coronavirus (COVID-19) can be anxiety-inducing. We have questions and concerns about how the virus is transmitted, how... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Living with No RegretsI accepted an invitation to interview for a maintenance manager position with the largest trucking company in the nation. The initial meeting was held in Gary, Indiana. The site manager... By Mac Howard3 min readBookmark for laterReactions 0 reactions Comments1 comments
The "Not So Nice" Things I Wish I'd Known Before My CystectomyBefore my cystectomy, I read every piece of information I was given, over and over. I joined online support group to engage with others like myself: a woman about to... By Shirley Norris2 min readBookmark for laterReactions 0 reactions Comments4 comments
Healthcare Obstacles & the LGBTQ+ CommunityEditor’s Note: LGBTQ+ stands for people who identify as lesbian, gay, bisexual, transgender, or queer. Have you or a loved one faced discrimination in a healthcare setting? There are many... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Big News on Valentine’s Day for Advanced Bladder Cancer PatientsYou could say 2020 delivered a sweet Valentine’s Day for bladder cancer patients. The American Society of Clinical Oncology (ASCO) held its annual Genitourinary (GU) Symposium in San Francisco at... By Renata Louwers3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Luxury of HealthI’ve recently had some nerve pain in my hand that is likely to be carpal tunnel syndrome. It’s not that bad, very manageable, and likely to get better. But it... By Renata Louwers3 min readBookmark for laterReactions 0 reactions Comments0 comments
How Bladder Cancer is Different for People of ColorCancer development, treatment, and outcomes are tricky topics to understand. The underlying reasons why a person gets cancer or how they might respond to treatment are often unknown and depend... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Melatonin Can Be a Friend to Bladder Cancer PatientsIf you’ve been diagnosed with bladder cancer, you've likely discussed your sleep habits with your doctor. Healing requires adequate sleep, after all; sleep gives your body windows of opportunity to... By TK Sellman4 min readBookmark for laterReactions 0 reactions Comments7 comments
Choosing HopeDeath row - Indiana is a death sentence state. For several years, I was a volunteer chaplain on the row. According to the men on the cell block, I was... By Mac Howard3 min readBookmark for laterReactions 0 reactions Comments0 comments
A Different View: Reflecting on How I Told My FamilyOur kids were teens when I was diagnosed. Decisions had to made about what and when to tell them about my cancer. These are hard decisions and choices. There is... By Mac Howard3 min readBookmark for laterReactions 0 reactions Comments0 comments
Preparing for Unrelated Major Surgery with a StomaI recently had to have a total knee replacement. I have needed this surgery for over 2 years, but due to having bladder cancer and needing a radical cystectomy, it... By Shirley Norris3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Only Way Out Is ThroughWhen life is going well, it’s easy to forget the raw distress that a bladder cancer diagnosis (or even the possibility of a diagnosis) once imposed on our psyche. I... By Renata Louwers3 min readBookmark for laterReactions 0 reactions Comments1 comments
My Bladder Cancer Journal Giveaway (Now Closed)From doctor’s appointments to medications to treatment plans, keeping track of everything related to your bladder cancer can feel overwhelming. Staying organized and having a place to keep track of... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Project Koru: Remembering That Life Is More Than Just Bladder CancerIn part one of this blog, I discussed my struggles getting to Maui and how anxiety tried to hold me back. Maui was the place I developed human connections, personal... By Curtis Garbett4 min readBookmark for laterReactions 0 reactions Comments0 comments