What Is the Culture Surrounding Bladder Cancer?As I became more deeply involved in bladder cancer patient advocacy, I read and heard a lot about the culture surrounding breast...reactionscomments
Living with No Evidence of DiseaseWhat happens when you are told, "Congratulations, you have no evidence of disease!"? Of course, you are elated, relieved, happy, and perhaps...reactionscomments
Fighting Through the Mental FogI drive a truck for a living. 12 to 14 hours a day, 6 days a week. I have been all over...reactions6comments
Your Questions? Answered! Hear From Bladder Cancer ResearchersInterested in hearing what experts have to say about bladder cancer treatments? We asked our Facebook community, "What questions do you have...reactionscomments
Speaking Out About the Unspoken: Sex After CystectomyBefore I had my radical cystectomy (bladder removal surgery) in January of 2017, I had an appointment with my doctor to discuss...reactions2comments
COVID-19 Basics for the Immune-CompromisedFor those living with chronic health conditions or cancer, current news about the coronavirus (COVID-19) can be anxiety-inducing. We have questions and...reactionscomments
Living with No RegretsI accepted an invitation to interview for a maintenance manager position with the largest trucking company in the nation. The initial meeting...reactions1comment
The "Not So Nice" Things I Wish I'd Known Before My CystectomyBefore my cystectomy, I read every piece of information I was given, over and over. I joined online support group to engage...reactions4comments
Healthcare Obstacles & the LGBTQ+ CommunityEditor’s Note: LGBTQ+ stands for people who identify as lesbian, gay, bisexual, transgender, or queer. Have you or a loved one faced...reactionscomments
Big News on Valentine’s Day for Advanced Bladder Cancer PatientsYou could say 2020 delivered a sweet Valentine’s Day for bladder cancer patients. The American Society of Clinical Oncology (ASCO) held its...reactionscomments
The Luxury of HealthI’ve recently had some nerve pain in my hand that is likely to be carpal tunnel syndrome. It’s not that bad, very...reactionscomments
How Bladder Cancer is Different for People of ColorCancer development, treatment, and outcomes are tricky topics to understand. The underlying reasons why a person gets cancer or how they might...reactionscomments
Melatonin Can Be a Friend to Bladder Cancer PatientsIf you’ve been diagnosed with bladder cancer, you've likely discussed your sleep habits with your doctor. Healing requires adequate sleep, after all;...reactions7comments
Choosing HopeDeath row - Indiana is a death sentence state. For several years, I was a volunteer chaplain on the row. According to...reactionscomments
A Different View: Reflecting on How I Told My FamilyOur kids were teens when I was diagnosed. Decisions had to made about what and when to tell them about my cancer...reactionscomments
Preparing for Unrelated Major Surgery with a StomaI recently had to have a total knee replacement. I have needed this surgery for over 2 years, but due to having...reactions1comment
The Only Way Out Is ThroughWhen life is going well, it’s easy to forget the raw distress that a bladder cancer diagnosis (or even the possibility of...reactions1comment
My Bladder Cancer Journal Giveaway (Now Closed)From doctor’s appointments to medications to treatment plans, keeping track of everything related to your bladder cancer can feel overwhelming. Staying organized...reactionscomments
Project Koru: Remembering That Life Is More Than Just Bladder CancerIn part one of this blog, I discussed my struggles getting to Maui and how anxiety tried to hold me back. Maui...reactionscomments
Caregivers Make This Journey Less of a BurdenI love telling stories. In my opinion, storytelling is vital to carrying on family and memories and ensuring loved ones never fade...reactionscomments
