Seeking New Ways to Detect Bladder CancerA new urine test called UroSEEK was recently developed by researchers at The Johns Hopkins Kimmel Cancer Center that can detect DNA mutations that are common among bladder cancers. A...Reactions0reactionsComments0 comments
How I Came to Have a Radical CystectomySo after 12 months of getting progressively more poorly, weight loss, extreme fatigue, loss of appetite, repeat UTI's, blood in urine, high temperatures and profuse sweating. I went to a...Reactions0reactionsComments0 comments
The ED Challenge-Beyond the PillErectile Dysfunction (ED) is one of the more common sexual issues for men. While ED tends to appear in men who are older, it is also common for men who...Reactions0reactionsComments0 comments
What is a Pain Management Specialist? Should I See One?About 50 million people in the United States live with chronic pain, meaning their pain is long-term. Chronic pain can come and go or be constant. It can interfere with...Reactions0reactionsComments0 comments
Cat Scan Got Your Tongue?I just got back from my 5-year CT scan. For those who have been diagnosed with cancer – pretty much any kind – once you got through the "main" treatments...Reactions0reactionsComments0 comments
Tips for Managing Cancer FatigueFatigue is one of the most common symptoms affecting people with bladder cancer and often one of the most debilitating. It can be both a symptom of bladder cancer and...Reactions0reactionsComments0 comments
Cancer Support Groups Could Be Better OrganizedMost major cancer centers offer support groups for patients and caregivers. Typically, these groups are organized by type of cancer (breast, lung, bladder, etc.) Bladder cancer groups are less common...Reactions0reactionsComments0 comments
Don’t Be a Visitor to Your Cancer: Make it Your OwnFor many cancers chemotherapy is a common treatment protocol. Some chemo is worse than others. Some is mild. Some is brutal. My own experience with chemo wasn’t great. That’s another...Reactions0reactionsComments0 comments
Don’t Be Afraid To Keep Asking Until You Find the Right FormulaIt is helpful – as a bladder cancer patient or caregiver – to keep in mind the idea that the medical system’s intention is to help you. If you don’t...Reactions0reactionsComments0 comments
It’s OK to Be Angry – Just Try to Channel It ConstructivelyA bladder cancer diagnosis, for yourself or someone you love, is overwhelming. Even so-called good news (on the cancer spectrum) of an early stage diagnosis does not feel good. It’s...Reactions0reactionsComments0 comments
Tips on Bathing and Showering With a StomaAfter my radical cystectomy, I was unsure whether I should bathe or shower, with or without my urostomy bag. The truth is, you can do either once you have had...Reactions0reactionsComments16 comments
Medical Menopause, Vulvovaginal Atrophy, and Bladder CancerAs I was looking through the research, I noticed many articles mentioning the high level of sexual dysfunctions in women that were caused by cancer treatments, including radiation and chemotherapy...Reactions0reactionsComments2 comments
Kegels For HimDid you know guys can also perform Kegel exercise? I’d guess no. Most people tend to relate Kegel exercises with giving birth and ‘other’ exercises women perform to strengthen their...Reactions0reactionsComments2 comments
My First Flight With a Stoma: What I LearnedHaving a stoma shouldn't stop us from doing almost all of the things that we previously enjoyed prior to surgery. For me that was travel. But I now had my...Reactions0reactionsComments5 comments
Tips for CaregiversDuring the course my chemotherapy and immunotherapy treatments to treat my bladder cancer, I did have caregivers who spent a lot of time with me during those difficult times. I...Reactions0reactionsComments0 comments
Patient-Doctor RelationshipWhen I first met my oncologist, I had no idea he was going to deliver such devastating news to me on our first visit. I am sure it was no...Reactions0reactionsComments0 comments
Cancer Positivity Can Isolate Those With Poor PrognosesA couple months after my first husband, Ahmad Khoshroo, was diagnosed with metastatic bladder cancer, I decided to go to a support group. He was too tired to go so...Reactions0reactionsComments0 comments
Kidney Infections and Protecting Your StomaI've had my stoma for exactly one year today and up until two weeks ago, everything first started had no issues at all. Then, I began to feel unwell. I...Reactions0reactionsComments4 comments
Urinary Issues and ConstipationWe are all in the same boat with some types of bladder issues. Whether you are stage 1 and endure BCG or have had your bladder removed and all the...Reactions0reactionsComments0 comments
What Are You? Team Ice Cream or Team Sherbet?When people who don’t have cancer hear about cancer or think about cancer they generally imagine the chemo - the nausea, the hair loss. Some may think of radiation and...Reactions0reactionsComments0 comments