Patient-Doctor RelationshipWhen I first met my oncologist, I had no idea he was going to deliver such devastating news to me on our first visit. I am sure it was no...Reactions0reactionsComments0 comments
Cancer Positivity Can Isolate Those With Poor PrognosesA couple months after my first husband, Ahmad Khoshroo, was diagnosed with metastatic bladder cancer, I decided to go to a support group. He was too tired to go so...Reactions0reactionsComments0 comments
Kidney Infections and Protecting Your StomaI've had my stoma for exactly one year today and up until two weeks ago, everything first started had no issues at all. Then, I began to feel unwell. I...Reactions0reactionsComments4 comments
Urinary Issues and ConstipationWe are all in the same boat with some types of bladder issues. Whether you are stage 1 and endure BCG or have had your bladder removed and all the...Reactions0reactionsComments0 comments
What Are You? Team Ice Cream or Team Sherbet?When people who don’t have cancer hear about cancer or think about cancer they generally imagine the chemo - the nausea, the hair loss. Some may think of radiation and...Reactions0reactionsComments0 comments
You Have 2 Cancers?As you know, I was diagnosed four years ago with Lung Cancer and had my entire left lung removed and have been in active treatment ever since. Chemotherapy, radiation, chemotherapy...Reactions0reactionsComments0 comments
Palliative Care Is Not Hospice: Seek It Out EarlyThere is a common misconception that palliative care is synonymous with hospice. And that to receive palliative care you must be enrolled in hospice. This is not true and it...Reactions0reactionsComments0 comments
Eating Healthy Without Breaking the BankMany people who are diagnosed with bladder cancer have made dietary changes to help their body fight cancer and reduce the risk of future recurrences. Although many of us have...Reactions0reactionsComments0 comments
5 Chemotherapy Care TipsOver the course of my chemotherapy, I learned some care tips that wanted pass along to those bladder cancer patients who are just beginning the chemotherapy journey or are currently...Reactions0reactionsComments3 comments
How to Ask for Help As a Cancer CaregiverWhen my first husband, Ahmad, had metastatic bladder cancer, people often said “let me know how I can help.” And while I appreciated their good intentions, I found it difficult...Reactions0reactionsComments0 comments
Stronger Relationships with Family and FriendsI have always had a strong relationship with my family and friends. Being close to family has always been important to me, as well as having a group of friends...Reactions0reactionsComments0 comments
Getting to Know My StomaSo I've had bladder cancer and with it came a Radical Cystectomy. The removal of my bladder along with nearby organs such as appendix, ureters, etc. and I now have...Reactions0reactionsComments0 comments
Aging and Bladder Cancer TreatmentIt's no surprise to learn that with advances in medicine and technology, individuals in the United States are living longer than ever before. However, as we age, we are more...Reactions0reactionsComments1 comments
Metastatic Bladder Cancer When We Least Expected ItI lost my first husband to metastatic bladder cancer in 2014. That was after being told in 2011 that he had been “cured.” We experienced both the best case and...Reactions0reactionsComments2 comments
Traveling with Bladder CancerI travel a lot for work. Like a lot. This past fall I was home maybe four weeks out of sixteen. The winter months were a bit better, only on...Reactions0reactionsComments2 comments
Awaiting Diagnosis: Tips on Staying SaneBladder cancer is the same as any other disease or illness. In that before receiving a final diagnosis a number of "tests" and/or procedures will generally need to be performed...Reactions0reactionsComments1 comments
What To Do When You Get The Worst Possible Bladder Cancer Diagnosis“The tumor board agreed unanimously that surgery is not an option,” the urologist told us. He didn’t make much eye contact so we understood that this was bad news but...Reactions0reactionsComments1 comments
Treating My Bladder SpasmsDo you experience bladder spasms, discomfort, trouble urinating and/or general pelvic pain after your BCG treatments or even with a Urinary Tract Infection (UTI)? I have terrible bladder spasms every...Reactions0reactionsComments0 comments
Don’t Plan for FailureOne of my goals with the posts I write for this site is to provide those who think they might, or already are, walking the same path as I walked...Reactions0reactionsComments0 comments
The Emotions of a Cancer DiagnosisThere are some days and dates in your life that you will just never forget. Like the birth of your child or the day you got married. Being diagnosed with...Reactions0reactionsComments0 comments