By Noel Forrest Moderator
It’s been a year since being diagnosed with t1 high grade non-invasive bladder cancer. So I decided to look back at some of the blogs I was putting out to friends and family at the beginning of my journey. Below is my second blog put out and it reads:
Since learning of my cancer in April my living conditions have changed dramatically. Prior to the cancer I was very out going, confident and able to mix well with others. I am now anxious every time I leave the house and feel more comfortable staying in doors. I’m unable to sustain the physical activities I once use to participate in and living with the pain is so depressing. The mental discomfort prior to each toilet use is draining and the actual effort of passing urine is excruciating and relentless. I feel trapped at the moment and long for the day when I can get my life back on track.
What totally amazes me most about this blog is that I honestly couldn’t remember now a year down the road that I was actually feeling like that. Don’t get me wrong it’s been a very tough year with a lot of painful moments and frustrating times, but for some reason my main memories have been about the positive things that have happened, such as responding well to the BCG treatment I’ve been receiving. The techniques I’ve learnt for coping with my anxiety when having a cystoscopy and the moment I was told my recurrence was low grade superficial. So I wondered if others had similar experiences to me when it came to your overall thoughts about your bladder cancer journey?