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Incontinent after TURB

I had TURB surgery in Dec 2020.I was in significant pain for 2 months after the surgery and have also been left totally incontinent. I have just completed BCG treatment. My bladder sphincter had scar tissue from the radical prostectomy done 3 years earlier. I had been given no indication I could be left incontinent because of the TURB. Anyone else had an issue like this.

  1. Hi @RonC. Sorry to hear you've been experiencing ongoing pain and side effects like incontinence after your TURBT treatment. I did not personally have this treatment, but I did find some articles that may be helpful for you as you wait for other community members to comment.

    https://bladdercancer.net/living/kegels-for-him

    https://bladdercancer.net/living/how-i-coped-with-treatment-procedures

    1. Thank you Liz.

      1. @RonC I am not aware of others being left incontinent after a TURBT but also as you stated you have prior surgical scar tissue. I would try the kegals to see if that helps at all. During my second TURBT the majority of my urethra was removed as cancer cells were seen there.
        I was left pretty much incontinent due to that. I chose to have my RC/IC soon after as I found it unbearable to be in adult diapers all of the time. I have no regrets as it was the best decision for me, but might not be for others. Are you using a foley at this time or?? and has their been any improvement in your incontinence at all? I will be thinking of you and hope that things improve. Linda ( moderator, BladderCancer.net team member)

    2. Thanks Linda: I am currently using a condom catheter, obviously not available to women. Without it on, I need an adult diaper and a max pad. Hugely uncomfortable. It appears there is no surgery available to repair the damage done to my sphincter during the TURB. Has anyone had such a repair?
      The plan is to continue with the external catheter for 6 months to see if there is any improvement then investigate an artificial urinary sphincter.

      1. @RonC. Good luck to you. I will be hoping that the catheter works and you see improvement. Please keep us posted. My best

        Linda ( moderator, BladderCancer.net team member)

      2. @RonC. Well we will all be praying that you have improvement. This is an ugly disease and treatments and options are frequently not very pleasant. Please keep us posted on your progress. Linda ( moderator, Bladdercancer.net team member)

    3. Thank you Linda

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