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Intravesical Mitomycin C - After It's in There

I'm having a course of six weekly treatments with intravesical mMitomycin C. There seems no consistent advice on what to do immediately after having the Mitomycin C put in the bladder.

Some advice says the Mitomycin C should stay in the bladder for 1 hour, others say 1-2 hours.
One website states "You may need to change positions every 15 minutes to be sure the drug reaches all areas of the bladder. Do this by rolling on your side, back, other side and stomach." I asked my specialist nurse and she suggested just going up and down stairs would be good. Others give no advice at all.

The suggestions on putting bleach down the toilet after you pee to destroy the mitomycin are variable, ranging from two cupfuls after every time you pee for the next 6 hours to 50ml, others omit that and say flush twice after you pee.

I've a feeling there is little evidence of efficacy for much, if any, of the advice on this. Most seems to be what the medical profession guesses might be best.

The advice I feel most inclined to follow is found here:
https://www.oncolink.org/cancer-treatment/oncolink-rx/intravesicular-mitomycin-mutamycin-r-mitomycin-c-given-into-the-bladder.

What does anyone else think?

I would like to see a consensus on this from the medical profession. Have there been any discussions around this?

Re: changing positions etc, is there any evidence that tumours recur anywhere in particular on the bladder wall following intravesical therapy, either with Mitomycin C or BCG?

  1. Hi @Jeff45,
    Unfortunately our team is all non-clinical personnel so we're unable to weigh in on this topic. There may be some medical people who are members of the forum, but I am personally not privy to that information and I would not count on an answer from he forum. If you haven't already done so, I encourage you to have these discussions with your medical team or seek a second opinion. You could also look into other medical organizations for information like the oncology based societies and cancer research organizations. They would have medical staff who would be able to respond to these questions.
    Thanks,
    ~Liz, Moderator

    1. Hi Liz,

      I did notice a reply to another post that appeared to come from someone medically qualified, so I didn't know if that would be the norm.

      Thanks for your reply.
      Jeff

    2. No worries @jeff45! After having been through the things we all have, there is a certain degree of knowledge that we acquire with dealing with our individual circumstances. Still, that should not ever replace a discussion with your actual medical team. Also, the traffic on any forum has ebbs and flows on it and I didn't want you to wait for an indeterminate amount of time for an answer from a medical person which may or may not come!

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