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Read conversations, start a discussion, and connect with others about bladder cancer.

Post TURBT & Mitomycin Lower Back Pain

Hello, had TURBT two days ago. I’m having a lot of stabbing back pain on one side around kidneys. I may have overdone it with activity (gardening). The doc says...

Speck of Blood in urine

My mother just came back from a routine follow up cysto appointment - doctor said everything looks good. Her next cysto appointment is March 2022. Her last BCG treatment was...

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Newly diagnosed, T1 bladder cancer, presenting as invisible - cystectomy or BCG - help!

Hello everyone this is my first post. I've had a stressful few months. Two major surgeries for colon cancer, in theory cancer free... then two weeks later I was diagnosed...

FISH testing for bladder cancer

I got a positive FISH test in December. Dr. ordered another FISH, cystoscopy and CT scans. All were negative. Fast forward to July. I got another positive FISH test. I...

Financial Costs

I’ve just been diagnosed with stage 2 Bladder cancer and have been told my bladder needs to be removed. I’ve chosen to go with the pouch. I’m on Medicare and...

Intravesical Mitomycin C - After It's in There

I'm having a course of six weekly treatments with intravesical mMitomycin C. There seems no consistent advice on what to do immediately after having the Mitomycin C put in the...

Cost of biopsy

Hi I am about 2 months over due for bladder biopsy.Due to my mental state which is much better now.I am having trouble affording the procedure.My care team does not...

Am I being paranoid?

I hope someone could ease my mind. I have T1 grade 3 BC. So far this journey scares me to death. Due to bad medical care the first 6 months...

Weight Management During Recovery

I have been thin my entire life. No, that is not a brag. It is just a fact of my life. I am often told how lucky I am. It...

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What are your tips for finding a good urologist?

Share your tips with fellow community members looking for a bladder cancer-specific urologist. If you haven’t found a good one, what challenges have you faced?...

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