Advice of what to do next? Bladder and urethra have erythemaHi guys, wanted to provide a quick history of what I’ve been going through and get advice on what you guys think I should do next. My issues started three...reactions1replyCystosopy & Screening
Fleshy material BCG treatmentAnyone know what the pink fleshy material is that is passed shorty after BCG treatment? Nothing on Internet explains it very well....reactions5replies
Metabolic TherapyHello all, I recently had my first TURBT + Mitomycin Wash and want to do everything I can to prevent recurrence. I'm wondering if anyone out there has any experience...reactions1replyTreatment
What to expect from BCG treatment?I had a diagnosis of high grade non invasive tumor on July 30 and moved quickly to set up treatment using BCG immunotherapy beginning late August. But I've been left...reactions22repliesTreatment
Time off work?Earlier this year I was on short term disability after my first Turbt to remove a tumor. A follow up found a new tumor and now I will be getting...reactions9repliesCopingCostCaregiving
Post TURBT & Mitomycin Lower Back PainHello, had TURBT two days ago. I’m having a lot of stabbing back pain on one side around kidneys. I may have overdone it with activity (gardening). The doc says...reactions7replies
Speck of Blood in urineMy mother just came back from a routine follow up cysto appointment - doctor said everything looks good. Her next cysto appointment is March 2022. Her last BCG treatment was...reactions2replies
FeaturedNewly diagnosed, T1 bladder cancer, presenting as invisible - cystectomy or BCG - help!Hello everyone this is my first post. I've had a stressful few months. Two major surgeries for colon cancer, in theory cancer free... then two weeks later I was diagnosed...reactions9repliesNewly DiagnosedTips & AdviceUrostomy
FISH testing for bladder cancerI got a positive FISH test in December. Dr. ordered another FISH, cystoscopy and CT scans. All were negative. Fast forward to July. I got another positive FISH test. I...reactions17replies
Financial CostsI’ve just been diagnosed with stage 2 Bladder cancer and have been told my bladder needs to be removed. I’ve chosen to go with the pouch. I’m on Medicare and...reactions9repliesCost