Online Illness Support from Peer Patients and Caregivers Resonates with Those SufferingWhen my husband Ahmad had metastatic bladder cancer, I was very limited in how often and for how long I could leave home. He was too sick and too groggy... By Renata Louwers3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Painful Punch of the “Survival Brag”The only version of bladder cancer that I know well is the worst one. The one that kills. The one that made me a widow at age 45. The one... By Renata Louwers3 min readBookmark for laterReactions 0 reactions Comments2 comments
Navigating Cancer Without Close FamilyThe Editorial Team at BladderCancer.net is highlighting people in the bladder cancer community. We talked to Liz who shares about finding support from friends, coworkers and support groups.Editorial Team: Can... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Losing Hope: Poor Quality of Life After CancerHello! I don't know if you know who I am, so let me introduce myself. My name is Anita, Anita Brown; I am married and have a son called Ashleigh... By Anita Brown5 min readBookmark for laterReactions 0 reactions Comments4 comments
I Don’t Sleep with a Night DrainI don’t sleep with a night drain system. I know that sounds crazy, but hear me out. My radical cystectomy was in August 2019, by November I was sleep deprived... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments0 comments
Liz's Bladder Cancer Story: Misdiagnosed at the Emergency RoomThe Editorial Team at BladderCancer.net is highlighting people in the bladder cancer community. We talked to Liz who shares how she was diagnosed with bladder cancer. At around age 38... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
Thankful On a Bad DayAs the Schuyler sisters said in Hamilton. “Look around, look around, how lucky we are to be alive right now.” I am lucky to be alive. I am grateful for... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments0 comments
Honoring All Who Have Been Touched by CancerOn National Cancer Survivors Day, observed each year on the first Sunday in June, we honor and celebrate anyone whose life has been changed by a cancer diagnosis. We stand... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Bladder Cancer Comic: COVID-19Many bladder cancer survivors have said that the fear of a recurrence is always at the back of their minds. During follow-up appointments, that fear comes back to the surface... By Lucius Wisniewski1 min readBookmark for laterReactions 0 reactions Comments0 comments
Nature's Impact on Our Physical & Mental HealthThere is growing evidence that spending time in nature can help people feel less depressed, anxious or stressed. Maintaining our connection to nature can improve one’s quality of life and... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
To Port or Not to Port?For bladder cancer patients whose cancer has moved beyond the bladder or is not responding to other treatments, chemo and radiation are given. Intravenous chemotherapy can be brutal on the... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments0 comments
Wool Socks and the Art of Self-CareGrey wool socks. Red toe caps and heel caps. A wide red band at the top. As long as I can remember, these are the socks my father has worn... By Mac Howard2 min readBookmark for laterReactions 0 reactions Comments0 comments
Should Our Active Surveillance Standards After Cystectomy Be Changed?I have wondered often if we are approaching bladder cancer surveillance in the right way for patients who have had their bladders removed (or otherwise essentially been deemed free of... By Renata Louwers3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Bladder Cancer Taught MeCancer is almost always life-changing in some way, and a part of that is how it reshapes how we think. With cancer come lessons. To find out what you have... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Going Public with My CancerI thought long and hard about what I wanted to do with my cancer story after I was diagnosed. I remember laying in my hospital bed at Emory a day... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments0 comments
Thank You, Cancer!Dear Cancer, It may seem strange that I am writing to you again, especially since the last time I was broken-hearted, emotional, and depressed. This time it is different. This... By Anita Brown2 min readBookmark for laterReactions 0 reactions Comments7 comments
Losing More Than Just Your BladderI was laying in my hospital bed, curled in a ball moaning from the incredible pain radiating through my left hip and down my leg. Four different IVs were hooked... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments1 comments
Organizing Your Day (and Your Space) At Home to Help You Feel GoodMany us are spending a lot of time at home. The last time I spent so much time at home was in 2013 and 2014 when my first husband had... By Renata Louwers3 min readBookmark for laterReactions 0 reactions Comments2 comments
One White Pine: Building Spaces for Living & HealingProfessor and landscape architect Daniel Winterbottom has been designing and building therapeutic gardens for over 20 years. Here, he shares his unique viewpoint on the power of nature to heal... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
In Defense of CryingI think there is an expectation that cancer fighters and survivors are these incredibly strong and resolute beings. They walk through life with heads held high, eyes fixed on the... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments2 comments