Preparing for My Annual ScopeOn the 18th of October, I will submit to my annual cystectomy. I believe this will be my 16th yearly check-up. Last week, Thursday, I decided what I really needed...reactions4comments
Health Insurance in the US - What to ConsiderInsurance can be confusing. Recently I have seen posts regarding the high costs related to bladder cancer. I hope that this information will be beneficial to many of you. For...reactionscomments
I Am a SurvivorDo I consider myself a survivor? Yes, I do. Per the definition of a survivor by the Oxford dictionary, "A person who survives, especially a person remaining alive after an event...reactions2comments
Video: Getting Started with an OstomyDo you know what an ostomy is or what to expect when living with one? Most people don't know too much about it unless they or someone close to them...reactionscomments
The Scope After BCGMom didn't get to enjoy the holidays of 2020. Halloween and Thanksgiving were not the celebrations she deserved. Furthermore, the family stayed away while she was in discomfort and fear...reactions16comments
The Struggles: Embarrassment and Diapers, Really!Living with bladder cancer is no easy feat. One of the comments said, in part, "No man is comfortable hearing about this procedure." I was struck by how lonely this...reactions3comments
When Managing Cancer Is a Way of LifeTo the vast majority, cancer brings only 2 options. You either kill it with aggressive treatment, or it kills you. But what if cancer were another chronic disease you had...reactions5comments
Should I Have My Stoma Refashioned?I am 4 and a half years after the surgery that changed and saved my life. This operation was for stage 4 bladder cancer and included removing my bladder and...reactions7comments
My Doctor Says I Am Cancer-FreeI have not written in a bit as I was busy preparing for the 13th annual bladder cancer retreat I co-host. But now that it is over for this year...reactions3comments
The Struggles: Embarrassing Moments and Bladder Cancer"It can feel embarrassing." Yes, yes, it can. Bladder cancer is ripe with embarrassing moments and trials. Let us take a look at just a few. A disclaimer before we...reactions10comments
Bladder Cancer Surgery Took Way More Than My Cancerous TumorBladder cancer, like any cancer, is a rollercoaster of a ride. Regardless of an individual's sex, religious beliefs, medical history, and more - it is a difficult journey to follow...reactions19comments
Look Good, Feel BetterThis was the title of a workshop I was very kindly invited to a couple of months ago as I had been dealing with skin cancer on my nose. Apparently...reactions1comment
Supporting an Ostomy Bag: Barriers and Ostomy PasteIf you are reading this, you may already be an ostomate – someone who wears an ostomy bag following bladder removal surgery. You may be early on your journey or...reactions13comments
Bladder Cancer Trivia: Test Your KnowledgeMany people have never heard of bladder cancer before they were diagnosed by a doctor. A tribute to our Trivia Tuesday, here is a highlight of the most compelling questions...reactionscomments
From My Son: Stay or Go? Helplessness or Hope?The weeks and months after my Mother's bladder cancer diagnosis was even more challenging than those first few days. I had been able to search more calmly through information on...reactions2comments
Community Views: What Does Self-Care Look Like for People With Bladder Cancer?Self-care is an important part of living with any condition, including cancer. Research has shown that it can reduce time spent in the hospital and improve survival rates. Some people...reactions2comments
That Feeling When The World Stood StillIt's a tough world to live in and comprehend at times. The Covid-19 Pandemic was a universal challenge and a difficult time in many ways. For many people, and in...reactionscomments
Urinary Dysfunction and IncontinenceBladder cancer and cancer treatments can damage the nerves and muscles that help control the urine flow from your bladder. This can cause problems with urination (urinary dysfunction) and leaking...reactions1comment
Regaining Confidence in My Stoma: A Post-Pandemic WorldThe pandemic, without a doubt, has affected almost all of us in some way or another. For me, as someone who was deemed "clinically, extremely vulnerable" at the start of...reactions8comments
Returning to Life: Reflecting on My Bladder Cancer RecoveryFour and a half years after my bladder cancer surgery, I have started to reflect a lot on all I have gone through in the last few years. I feel...reactions1comment