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bladder cancer survivor

Does this group talk much about bladder cancer from a survivors point of view. I have already done all the torturous procedures you can think of and now I have urostomy. I certainly feel bad for each and everyone that has to go through the bladder cancer fight and I hope you and your bladder wins. I am no so lucky as to have my bladder but I have a new life being cancer free. So my question is "Are there discussions here about life without a bladder?"

  1. hi. Yes we absolute do. I am a stage 4 bladder cancer survivor, living without a bladder and with a urostomy (and a colostomy) we have a featured collection on life with a urinary diversion here which you might find interesting https://bladdercancer.net/living-with-a-urinary-diversion I also wrote about lots of aspects of life after bladder removal here. https://bladdercancer.net/author/lauramackenzie if you haven’t done so, you might want to share your story here and add to our collection: https://bladdercancer.net/stories/new Laura, Moderator, BladderCancer.net

    1. Hey first off let me say congrats on being cancer free! Laura shared some terrific links above. How are you feeling as a whole? I know adjusting to life after urostomy can be challenging to navigate at first. - Jada (BladderCancer.net team member)

      1. @CommunityMember457 - Congrats on being cancer free. There are many of us out there just like you. I had my RC in 2014 and have been doing great since then. I hope you are doing well bladderless also. You will find many articles about post RC that I hope you will find helpful. Is there anything specific that you would like to know or that we could help with regarding living without your bladder? My best Linda Urbanski ( moderator, Bladdercancer.net team member)

    2. 10 years - neobladder. And glad to be here. Many of my posts focus on what happens day-to-day with bladder cancer. Life is 90% what it was before. Some slight adjustments are needed to make sure I have access to bathrooms on a 4-hour schedule and some erectile dysfunction from the surgery - but not life-defining! Happy to answer any specific questions you may have related to living with the upside of bladder cancer (yes - being alive is one of them!)

      1. great post and the posit r highlighted of life after. Thank you. Laura, Moderator, BladderCancer.net

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