Has anyone had changes in size or shape of their stoma?Four years since surgery. Have noticed stoma is extended some. Is this serious?...Reactions0reactionsComments3 repliesUrostomy
Radical Cystectomy (RC) for a Grandma?Hi, my Mom has been diagnosed with Stage 4 Urethra cancer. We can't find much on that because it is so rare so we are cruising through bladder cancer forums...Reactions0reactionsComments1 repliesSurgeryUrostomyTips & Advice
Surgery ChoiceI’m a 68 year old male works out, runs and bikes. So healthy body weight and active. I was diagnosed with bladder cancer which penetrated into the muscle. PET scan...Reactions0reactionsComments3 repliesSurgeryNeobladderUrostomy
Update!!!It's been a while since I posted but I wanted to share some good news! My husband has stage 4 bladder cancer that metastasized to his lungs. It's been a...Reactions0reactionsComments2 repliesMetastaticUrostomySecond Opinion
urostomyhad neo bladder removed on 11/10/2030 having lots of trouble can some one contact me thanks spike1218...Reactions0reactionsComments1 repliesTravelUrostomy
Leaking from a urostomy pouchHello everyone! I haven't posted for awhile. And I just want to thank everyone who was so kind in checking up on my past posts about my father when I...Reactions0reactionsComments5 repliesSecond OpinionUrostomyTips & Advice
Who has used a stealth belt? What is your experience? Do you use a side one or a long one? Does it help when swimming? I miss swimming so much...Hope lol questions listed above are ok....Reactions0reactionsComments22 repliesCopingTips & AdviceUrostomyAssistive DevicesNeobladder
ROBOTIC ASSISTED LAPAROSCOPIC RADICAL CYSTECTOMY I am scheduled to get my ROBOTIC ASSISTED LAPAROSCOPIC RADICAL CYSTECTOMY in two more days. (2/15/23) I am absolutely terrified!!! I have been through so much already. I have had...Reactions0reactionsComments9 repliesUrostomySurgery
After a radical cystectomy ?High I have just joined today and would like to ask a question, I had my Bladder removed just over 3 years ago, cancer has gone but I have Bowel...Reactions0reactionsComments15 repliesUrostomy
Appliance change questionsHow often to you change your appliance? If two piece do you change both the bag and wafer? I use a 2 piece Coloplast Sensura Mio Click. I use the...Reactions0reactionsComments13 repliesUrostomy