Leaking from a urostomy pouchHello everyone! I haven't posted for awhile. And I just want to thank everyone who was so kind in checking up on my past posts about my father when I...Reactions 0 reactions Comments5 repliesSecond OpinionTips & AdviceUrostomy
Update!!!It's been a while since I posted but I wanted to share some good news! My husband has stage 4 bladder cancer that metastasized to his lungs. It's been a...Reactions 0 reactions Comments2 repliesMetastaticSecond OpinionUrostomy
Who has used a stealth belt? What is your experience? Do you use a side one or a long one? Does it help when swimming? I miss swimming so much...Hope lol questions listed above are ok....Reactions 0 reactions Comments22 repliesAssistive DevicesCopingNeobladderTips & AdviceUrostomy
ROBOTIC ASSISTED LAPAROSCOPIC RADICAL CYSTECTOMY I am scheduled to get my ROBOTIC ASSISTED LAPAROSCOPIC RADICAL CYSTECTOMY in two more days. (2/15/23) I am absolutely terrified!!! I have been through so much already. I have had...Reactions 0 reactions Comments9 repliesSurgeryUrostomy
After a radical cystectomy ?High I have just joined today and would like to ask a question, I had my Bladder removed just over 3 years ago, cancer has gone but I have Bowel...Reactions 0 reactions Comments15 repliesUrostomy
Appliance change questionsHow often to you change your appliance? If two piece do you change both the bag and wafer? I use a 2 piece Coloplast Sensura Mio Click. I use the...Reactions 0 reactions Comments13 repliesUrostomy
RC next weekHaving a radical cystectomy with ID on Tuesday, April 26, 2022 (UPMC Mercy in Pittsburgh). Had a biopsy in November 2021; follow up in December- cancer had returned, it was...Reactions 0 reactions Comments21 repliesSurgeryUrostomy
Stoma and a kidney stone.On my recent scans I was told everything looked good. However, the doctor mentioned that I have a small kidney stone. Does anyone know if a kidney stone will pass...Reactions 0 reactions Comments2 repliesUrostomy
bladder cancer survivorDoes this group talk much about bladder cancer from a survivors point of view. I have already done all the torturous procedures you can think of and now I have...Reactions 0 reactions Comments5 repliesUrostomy
General questions; I am 2 months along with urostomyI had my surgery ( Radical cystoprostatectomy with ileal conduit) on April 26, 2022. I would like some feedback from other members, please. Firstly, is there a preference for one...Reactions 0 reactions Comments13 repliesUrostomyTips & Advice
