Dear Newly Diagnosed Bladder Cancer PatientsOk, so you have just found out you have bladder cancer. Just breathe. Hi, I am Anita and I just wanted to say I know how you must be feeling...Reactions0reactionsComments4 comments
A Brief History of My Cancer: From Catheters to Continuing OnLast we left our brave hero, he was checking into the hospital for a radical cystectomy, prostatectomy, and neobladder build with installation. He might have had his oil changed while...Reactions0reactionsComments13 comments
The Comedy in Getting My Port InsertedMy access journey has been a collection of stories all on its own - it has not been a pleasant journey either. When I went in for my radical cystectomy...Reactions0reactionsComments1 comments
It's a Wrap! The 2021 North Carolina Bladder Cancer RetreatThis retreat originally started in 2008 as a picnic to bring people with bladder cancer together. Showing others they are not alone, asking questions in an open forum where nothing...Reactions0reactionsComments0 comments
For People New to Chemo TreatmentI just want to share that I had my first 6-hour Chemo treatment today, the first day of 4 cycles with 3 days of chemo followed by 21 days of...Reactions0reactionsComments7 comments
Histology results came back with cancer in one lymph nodeAfter 9 months of battling through the diagnosis of high-grade muscle invasive bladder cancer, we found out the tumour couldn’t all be removed and the pain was unbearable. The chemotherapy...Reactions0reactionsComments8 comments
Are You Ever Jealous of Other People's Seemingly Good Health?It is strange but I have been thinking about this a lot lately. Why do some people really seem to suffer from one thing after another? Whilst others just seem...Reactions0reactionsComments3 comments
Getting HelpOne thing I wish I had understood earlier in my cancer journey (and life in general) is it is OK to not be OK. I've always grown up with the...Reactions0reactionsComments6 comments
Interview with Basil: Managing Scope PainWe have talked extensively to the BladderCancer.net community about cystoscopies and managing the pain that sometimes comes along with it. Basil came to us with a new inquiry that we...Reactions0reactionsComments0 comments
Urostomy and scar tissue/ pelvic floor dysfunctionWell, I had to have a radical cystectomy 8 months ago. I was told I could have a normal life afterward... For me, that was a myth. Within months I...Reactions0reactionsComments5 comments
A Brief History of My Bladder Cancer: Blood in My Urine to a CystectomyI have been contributing to this site, BladderCancer.net, for a few years now. I have written many individual posts covering specific things I experienced over the past 9 years since...Reactions0reactionsComments2 comments
Deals with God and Bladder CancerI grew up in the church. I was very active into adulthood. But somewhere around mid-life, I drifted away from the church. It wasn't an angry blowout or some monumental...Reactions0reactionsComments7 comments
Setting BoundariesWhen I started sharing my story online, I never anticipated just how many people would start following along. In just a few short months I had subscribers, a partnership with...Reactions0reactionsComments1 comments
My Thoughts on Raising Ostomy AwarenessIronically, when I received my bladder cancer diagnosis, I had already been advocating and doing awareness campaigns around the topic of ostomies through the position I had at the time...Reactions0reactionsComments1 comments
Changing My Medical TeamIn May of this year, I was faced with a difficult situation. Stay at the small cancer center I had moved to for maintenance treatment or transfer back to the...Reactions0reactionsComments0 comments
Can We Talk About Sex After a Radical Cystectomy?This may be the hardest post I've had to write... It has to do with sex after bladder cancer, specifically after my cystectomy. I'm pretty sure I won't get through...Reactions0reactionsComments3 comments
Cheat Sheet: Bladder Cancer TermsImagine this: You are just recently diagnosed with bladder cancer, and all of the people you are talking to are throwing around a million medical terms a minute. For that...Reactions0reactionsComments1 comments
Coming Soon: World Ostomy DayHere in the US, we are fortunate to have an organization and national support to celebrate an Ostomy Awareness Day annually on the first Saturday in October. What many don't...Reactions0reactionsComments0 comments
My Bladder Cancer Medical BinderWhen I was diagnosed with bladder cancer I suddenly found myself in charge of tracking, packing, and keeping so many different things with me at all times. Extra ostomy supplies...Reactions0reactionsComments1 comments
Life After Bladder Cancer?Are you surviving? Thriving? Or a bit of a 'hot mess' (like me)? I am not transitioning peacefully and calmly into living with cancer, and the after-effects thereof. I am...Reactions0reactionsComments18 comments
