Alina's Unexpected StoryAfter having 3 UTIs in 2020, practically very few during my lifetime, I was told I was getting old, etc. In December I noticed blood in my urine, the urologist...reactions15comments
Swollen Ankles and Other Post-Op SymptomsThere is a lot I was prepared for after my radical cystectomy surgery. A big scar, an ostomy, a rigorous recovery, but there were so many things I had no...reactions6comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like bladder cancer can...reactions1comment
What to do When Treatment is Going WellMy latest set of CT scans have come back saying I’m still in good shape. My labs are great, I’m handling treatment well and we know that this will be...reactions1comment
Reflecting on My 4th Year Cancer-FreeJanuary 31, 2021, was four years since I had my radical cystectomy. Ordinarily, the day is met with various fanfares from me. It usually goes something like this - I...reactions2comments
Escaping Nagging Paranoia with MindfulnessI want to be transparent here. I want anyone reading these articles to see my truth and be able to relate as they can or need to. This is therapeutic...reactions2comments
Bladder cancer spreadsI was diagnosed with stage 3 squamous cell carcinoma of the bladder in March 2020. I was told it was from over catheterizing that my urologist insisted that I had...reactions4comments
My Journey and How it All StartedHello, my name is Lelee. I am a bladder cancer fighter; I use the word fighter because this cancer keeps coming back so I feel like the fight keeps going...reactions23comments
National Cancer Survivors Day 2021: Motivation During Our Darkest Days with CancerOn National Cancer Survivors Day, observed each year on the first Sunday in June, we honor and celebrate all of those who have been impacted by a cancer diagnosis. Every...reactions1comment
One More Thing: Kidney Disease and Lifestyle ChangeI have gotten pretty good at rolling with the punches. I think any cancer patient has to be prepared to remain flexible and ready for the unexpected. But every now...reactions1comment
The Value of Community: North Carolina Bladder Cancer RetreatMay is bladder cancer awareness month, and I thought this was the perfect opportunity to tell you about how I met some of my online support team. I was diagnosed...reactions6comments
Support Fatigue and Managing ExpectationsAs I was in the hospital recovering from my radical cystectomy, the flowers and cards from family, friends, and supporters covered every inch of my room. My phone was constantly...reactionscomments
Living With & Finding StrengthEvery chronic and life-threatening condition comes with its own symptoms and challenges, and while each individual's experience is unique, there is wisdom to be found in learning how others have...reactionscomments
Perks of Being an OstomateTwo years ago I would have said there was absolutely nothing positive about having a urostomy. It was uncomfortable, always a hassle, and a constant outward reminder of my bladder...reactions11comments
Fight Bladder Cancer by Treating OSAIf you have been diagnosed with bladder cancer, and you have trouble sleeping — and maybe you have had this trouble with sleep for a while — you may want...reactionscomments
Done Waiting: The Results of My Biopsy(Spoiler alert: No skin cancer! Writer does long “happy dance.”) When last we left our faithful cancer fighter (me), I had just had a biopsy of a spot on my...reactions1comment
Community Views: The Truth About Bladder CancerBladder cancer is not a rare cancer. In fact, it is far more common than people realize. However, it is a type of cancer that most people do not have...reactions3comments
Opinion: Why Bladder Cancer Organizations Should Adopt the Tricolor RibbonWhen I was finally diagnosed with bladder cancer after a few years of fighting the uphill battle, I took to the world wide web. In my pain med-induced stupor, while...reactions14comments
My Bladder Cancer Diagnosis Was One Great MirrorEveryone will remember the moment of diagnosis. I certainly do. The doctor put his hand on my shoulder and said, "It's bad news, it's a tumour. Now, everything I say...reactions3comments
Getting the COVID-19 Vaccine While on ImmunotherapyWhen the vaccine for COVID-19 was released, I immediately sat down with my oncologist to discuss the pros and cons of me personally getting the vaccine. Primarily we were concerned...reactions1comment