When All the Information Out There May Be TMI!I had an RC/IC (radical cystectomy/ileal conduit) in September 2014. I don't think about my bag; it has become a natural part of my life. I chose to have RC a short...reactions2comments
Survivor's Guilt and Bladder Cancer: the Unseen WeightSurvivor's guilt: noun, a condition of mental and emotional stress experienced by someone who has survived an incident in which others died. I actually came pretty close a couple of...reactions1comment
Could Your Job Increase Your Risk of Developing Bladder Cancer?If you or your loved one is diagnosed with bladder cancer, you likely have questions about the cause of bladder cancer. It is normal to wonder if there was anything...reactions1comment
Hear From Leanne: Bladder Cancer Symptoms, Chemotherapy, & SurgeryWe're highlighting people in the bladder cancer community. I talked to Leanne about her early symptoms and how she felt when she received her diagnosis of invasive high-grade bladder cancer...reactions1comment
Dealing With Urosepsis While CaregivingRecap! Cue the melodic music. To recap, I was taking care of my mother who was very ill. We were having usually hot (and I mean roasting hot) weather, especially...reactions2comments
What Is Grief Tourism?Grief tourist: someone who pretends to care about your chronic/serious illness on social media, but never offers their help in any real meaningful capacity. I was laying in my hospital...reactions1comment
BCG or Gemcitabine for Bladder Cancer: When Should They Be Used?In 1976, Bacillus Calmette-Guérin (BCG) became known as an effective treatment for non-muscle invasive bladder cancer (NMIBC). Since then, BCG has been used throughout the world for preventing NIMBC. Tice®...reactions36comments
Boundaries & Learning to Prioritize OurselvesLimits, boundaries, managed access, call it what you wish. This is a touchy subject, but it is a vital idea as you move along with any illness or condition that...reactions2comments
I Am Not My CancerMy name is Brittney. I am 30 years old, and I have stage IV bladder cancer. Take another look at that sentence. I HAVE cancer, I am not my cancer...reactions1comment
How a UTI Can Go Undetected With a UrostomyIn 2020-2021 alone, I have had 2 separate occasions of how a missed UTI can turn into one of the most life-threatening illnesses that there is: urosepsis! It all started...reactions2comments
Managing Bladder Cancer Symptoms and Side EffectsWhen living with bladder cancer, every day can look different. If you are currently in treatment, you might be dealing with side effects or symptoms like fatigue or pain. You...reactions5comments
When It's a Bad DayMy mom has this quote she says whenever anyone in our family is just having a rotten, no good, awful day. “It's a bad day, not a bad life”. This is...reactions3comments
Seasonal Affective DisorderS.A.D. Seasonal affective disorder. The depression that comes with the seasonal changes of fall and winter. I feel it in my bones. The changing of the seasons when fall slides...reactionscomments
How Phil Made the Decision to Have a Radical CystectomyWe're highlighting people in the bladder cancer community and sharing some of their experiences. I talked to Phil about his first bladder cancer symptoms, getting multiple medical opinions, and his...reactionscomments
Bladder Cancer: Know the SignsWhile out of town working on a project in Denver, I was startled when I noticed blood in my urine one morning. So I did what most men I know...reactionscomments
Planning for "The End"When I found out that I not only had cancer, but stage IV metastatic cancer, I knew that my life would not necessarily end grey-haired and old. Now, I have...reactions1comment
My Spiritual Cancer JourneyI am a 69 year-old active woman (retired health educator) living in rural Maynard, MA, with my husband of 38 years. I've always considered myself an extreme lover of life...reactions1comment
Bladder Cancer Treatments, Hearing Loss, and TinnitusI first found out that I had bladder cancer in August of 2016. Most would have found it a shock, but for me, there was relief in that I had...reactions4comments
Depression & Bladder CancerI have probably always needed therapy and medication for depression. However, it wasn't until I was deep in the midst of my bladder cancer diagnosis that I was given the...reactions1comment
How My Bladder Cancer Story StartedMy bladder cancer story started in the summer of 2016, though I was not diagnosed until November 2017. The first thing I noticed was blood in my urine. I went...reactions1comment
