BCGI was diagnosed in November 2018 with high grade bladder cancer. I seen an urologist was booked in for a TURBT 18th Dec bit of a shock had a nervous...Reactions0reactionsComments1 comments
Just Because I Wear It Well...“Just because I wear it well.... ...doesn’t mean it’s not heavy.” This quote from a fellow stomate who frequently posts on Instagram, got right to me. For 3 years now...Reactions0reactionsComments2 comments
Don’t Delay Getting Back to LifeIt has been 8 years since my chemotherapy and surgery to remove my bladder and prostate, installing a neobladder. I'm pretty much back to normal. I say pretty much because...Reactions0reactionsComments4 comments
Silent RecurrenceI was 47-years old at the first diagnosis of a single non-invasive urothelial carcinoma (NMBIC. It was described as, “Something in your bladder cancer that has to come out so...Reactions0reactionsComments1 comments
Trying To Stay PositiveSo, to make a long story short, back in April of this year, I noticed some blood clots in my urine. I then made an appointment with my urologist and...Reactions0reactionsComments16 comments
Don’t Fear the Bladder CancerI was reminded I have a CAT scan coming up in a few weeks. I am 8 years from my surgery and still need to get annual CAT scans. My...Reactions0reactionsComments3 comments
Reduce Emergency Room Visits: Managing Abdominal PainPain management when you have bladder cancer can be a real challenge. Recent research shows that people with bladder cancer are more likely to visit an emergency room for gastrointestinal...Reactions0reactionsComments0 comments
Trying Holistic RemediesI am a 100% supporter of science-backed medicine. It is my medical team’s knowledge and care that has brought me back from the brink of my bladder cancer time and...Reactions0reactionsComments1 comments
Sylvia's Story: My Life with Bladder CancerHello everyone, my name is Sylvia and at the of 68, I found out in the worst way possible, that I had bladder cancer. ☹ I retired from working in...Reactions0reactionsComments1 comments
Unexpected Twists: Bladder cancer and metastatic urothelial carcinomaI was diagnosed with bladder cancer in 2014 and dealt with both TURBT procedures and BCG for quite a while. One day a piece of cancer blocked my ureter and...Reactions0reactionsComments3 comments
The Seemingly Impossible Task of Avoiding Bladder IrritantsThinking back on my first urology appointment, sometimes I have to laugh. The urologist was the first doctor in years who actually listened to my symptoms and took the appropriate...Reactions0reactionsComments2 comments
Suffering for ManhoodA young man reaches out to his mother and says, “I am suffering from some depression.” The father walks by catches the statement and says, “Your just weak-minded.” I hear...Reactions0reactionsComments3 comments
Alina's Unexpected StoryAfter having 3 UTIs in 2020, practically very few during my lifetime, I was told I was getting old, etc. In December I noticed blood in my urine, the urologist...Reactions0reactionsComments15 comments
Swollen Ankles and Other Post-Op SymptomsThere is a lot I was prepared for after my radical cystectomy surgery. A big scar, an ostomy, a rigorous recovery, but there were so many things I had no...Reactions0reactionsComments6 comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like bladder cancer can...Reactions0reactionsComments1 comments
What to do When Treatment is Going WellMy latest set of CT scans have come back saying I’m still in good shape. My labs are great, I’m handling treatment well and we know that this will be...Reactions0reactionsComments1 comments
Reflecting on My 4th Year Cancer-FreeJanuary 31, 2021, was four years since I had my radical cystectomy. Ordinarily, the day is met with various fanfares from me. It usually goes something like this - I...Reactions0reactionsComments2 comments
Escaping Nagging Paranoia with MindfulnessI want to be transparent here. I want anyone reading these articles to see my truth and be able to relate as they can or need to. This is therapeutic...Reactions0reactionsComments2 comments
Bladder cancer spreadsI was diagnosed with stage 3 squamous cell carcinoma of the bladder in March 2020. I was told it was from over catheterizing that my urologist insisted that I had...Reactions0reactionsComments4 comments
My Journey and How it All StartedHello, my name is Lelee. I am a bladder cancer fighter; I use the word fighter because this cancer keeps coming back so I feel like the fight keeps going...Reactions0reactionsComments23 comments
