My First Experience with a Urinary Diversion Before Bladder RemovalFor most people, the words urostomy, stoma, ostomy, and ileal conduit are all foreign unless, of course, you have one or know...reactionscomments
Finding a Caregiver in the Most Unexpected PlacesMost humans put others before themselves. It is in our nature and part of our makeup. Many people find this very difficult...reactions1comment
Stepping Back on Board Post-PandemicThe sun setting as we took off from Faro Airport in Portugal was a sight to behold. The sun was also setting...reactions18comments
That Could Have Been 2 BitesI am sure every parent had had those times when a child inserted more food in their mouth than they thought possible...reactions1comment
Preparing for My Annual ScopeOn the 18th of October, I will submit to my annual cystectomy. I believe this will be my 16th yearly check-up. Last...reactions4comments
Bladder Cancer JourneyI am on my third chemo, just to get rid of any lingering cells if any. I have Bladder cancer 60yrs young...reactions8comments
Health Insurance in the US - What to ConsiderInsurance can be confusing. Recently I have seen posts regarding the high costs related to bladder cancer. I hope that this information...reactionscomments
I Am a SurvivorDo I consider myself a survivor? Yes, I do. Per the definition of a survivor by the Oxford dictionary, "A person who survives...reactions2comments
Radical SurgeryHello, I had my bladder, uterus/tubes, ovaries, and bladder diversion made back in 2019. I was diagnosed with high-grade muscle invasion of...reactions4comments
The Scope After BCGMom didn't get to enjoy the holidays of 2020. Halloween and Thanksgiving were not the celebrations she deserved. Furthermore, the family stayed...reactions16comments
The Struggles: Embarrassment and Diapers, Really!Living with bladder cancer is no easy feat. One of the comments said, in part, "No man is comfortable hearing about this...reactions3comments
When Managing Cancer Is a Way of LifeTo the vast majority, cancer brings only 2 options. You either kill it with aggressive treatment, or it kills you. But what...reactions5comments
Should I Have My Stoma Refashioned?I am 4 and a half years after the surgery that changed and saved my life. This operation was for stage 4...reactions7comments
My Doctor Says I Am Cancer-FreeI have not written in a bit as I was busy preparing for the 13th annual bladder cancer retreat I co-host. But...reactions3comments
Radical Cystectomy Scheduled for February 2023I was diagnosed with NMIBC in 2021 and have had 4 turbts because it keeps recurring. Had BCG and it didn't work...reactions18comments
My First Year of BCG TreatmentsI had TURBT surgery in April 2020, after an ultrasound in February and a cystoscope in March showed I had bladder tumors...reactions2comments
The Struggles: Embarrassing Moments and Bladder Cancer"It can feel embarrassing." Yes, yes, it can. Bladder cancer is ripe with embarrassing moments and trials. Let us take a look...reactions13comments
Bladder Cancer Surgery Took Way More Than My Cancerous TumorBladder cancer, like any cancer, is a rollercoaster of a ride. Regardless of an individual's sex, religious beliefs, medical history, and more...reactions19comments
Look Good, Feel BetterThis was the title of a workshop I was very kindly invited to a couple of months ago as I had been...reactions1comment
AloneMy diagnosis of NMI bladder cancer came within the same year that I lost my husband (from a surgery complication). I do...reactions7comments
