Radical SurgeryHello, I had my bladder, uterus/tubes, ovaries, and bladder diversion made back in 2019. I was diagnosed with high-grade muscle invasion of cancer. I was told it had not spread...reactions4comments
The Scope After BCGMom didn't get to enjoy the holidays of 2020. Halloween and Thanksgiving were not the celebrations she deserved. Furthermore, the family stayed away while she was in discomfort and fear...reactions16comments
The Struggles: Embarrassment and Diapers, Really!Living with bladder cancer is no easy feat. One of the comments said, in part, "No man is comfortable hearing about this procedure." I was struck by how lonely this...reactions3comments
When Managing Cancer Is a Way of LifeTo the vast majority, cancer brings only 2 options. You either kill it with aggressive treatment, or it kills you. But what if cancer were another chronic disease you had...reactions5comments
Should I Have My Stoma Refashioned?I am 4 and a half years after the surgery that changed and saved my life. This operation was for stage 4 bladder cancer and included removing my bladder and...reactions7comments
My Doctor Says I Am Cancer-FreeI have not written in a bit as I was busy preparing for the 13th annual bladder cancer retreat I co-host. But now that it is over for this year...reactions3comments
Radical Cystectomy Scheduled for February 2023I was diagnosed with NMIBC in 2021 and have had 4 turbts because it keeps recurring. Had BCG and it didn't work, and the last pathology report indicated that it...reactions18comments
My First Year of BCG TreatmentsI had TURBT surgery in April 2020, after an ultrasound in February and a cystoscope in March showed I had bladder tumors. Before I left the hospital, a chemotherapy drug...reactions2comments
The Struggles: Embarrassing Moments and Bladder Cancer"It can feel embarrassing." Yes, yes, it can. Bladder cancer is ripe with embarrassing moments and trials. Let us take a look at just a few. A disclaimer before we...reactions10comments
Bladder Cancer Surgery Took Way More Than My Cancerous TumorBladder cancer, like any cancer, is a rollercoaster of a ride. Regardless of an individual's sex, religious beliefs, medical history, and more - it is a difficult journey to follow...reactions19comments
Look Good, Feel BetterThis was the title of a workshop I was very kindly invited to a couple of months ago as I had been dealing with skin cancer on my nose. Apparently...reactions1comment
AloneMy diagnosis of NMI bladder cancer came within the same year that I lost my husband (from a surgery complication). I do not have children (just 2 stepchildren). Going to...reactions7comments
Supporting an Ostomy Bag: Barriers and Ostomy PasteIf you are reading this, you may already be an ostomate – someone who wears an ostomy bag following bladder removal surgery. You may be early on your journey or...reactions13comments
Most of Our Worries Are TimewastersThis article is for those who are newly diagnosed with bladder cancer and have chosen to have a radical cystectomy with an ileal conduit diversion. Take heart! The surgery and...reactions5comments
DITTOI had laid a daughter of 64 to rest approximately four months before being diagnosed with the very same type of cancer, stage 3. I am 93 and consider it...reactions2comments
Community Views: What Does Self-Care Look Like for People With Bladder Cancer?Self-care is an important part of living with any condition, including cancer. Research has shown that it can reduce time spent in the hospital and improve survival rates. Some people...reactions2comments
That Feeling When The World Stood StillIt's a tough world to live in and comprehend at times. The Covid-19 Pandemic was a universal challenge and a difficult time in many ways. For many people, and in...reactionscomments
Regaining Confidence in My Stoma: A Post-Pandemic WorldThe pandemic, without a doubt, has affected almost all of us in some way or another. For me, as someone who was deemed "clinically, extremely vulnerable" at the start of...reactions8comments
High-Grade T1 Bladder CancerI was diagnosed 10 years ago and had the TURBT with a blast of chemo. Went into remission for 10 years. April 22, I suddenly could not urinate. I finally...reactions5comments
I Can’t Quite Believe I’m Writing ThisOn August 25, 2021, I had a radical cystectomy; since then I've had 2 clear scans. Today I was put back on the cancer pathway. I have lumps in my...reactions11comments
