Son diagnosed at 38My son was just diagnosed with high grade stage 4 bladder cancer. The sad thing is that he had been referred to a urologist for an enlarged prostate. He had...Reactions0reactionsComments4 comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
Navigating Transportation Barriers to Cancer CareDifferent treatments and appointments are a part of fighting cancer. But keeping up with these commitments can be quite hard. Studies show that 1 of the biggest hurdles can be...Reactions0reactionsComments3 comments
An Unexpected, Unwelcome SurpriseIn December 2021 I was diagnosed with possible bladder cancer after 2 episodes of blood in my urine, several months apart. I pretty much ignored the first episode, since it...Reactions0reactionsComments2 comments
Radical Cystectomy Gave Me TimeMy diagnosis happened over 16 years ago. The threads I have read after finding this site it lead me to believe that a lot of advancement has happened since then...Reactions0reactionsComments2 comments
Bladder Cancer…at 39?My story began with a visit to the doctor for an unrelated issue. In the course of the discussion with the doctor he wanted to take a urine sample. I...Reactions0reactionsComments12 comments
Bladder Cancer: Effects on Those Around UsWhen your world is turned upside down after hearing the "C" word at a diagnosis consultation - it also rocks the world of those around you. Those closest to you...Reactions0reactionsComments2 comments
Bladder Cancer - Management of Fear through educationI have battled fear of recurrence for six full years. All of the tips from bladdercancer.net's A Guide for Navigating Recurrence Anxiety have a place in diminishing the paralyzing fear...Reactions0reactionsComments2 comments
How I Will Spread the Word this Bladder Cancer Awareness MonthThe biggest goal of any advocate, and for many patients too, is to spread the word. This is never truer than with bladder cancer. Why is that? Well, I may...Reactions0reactionsComments0 comments
A Guide for Navigating Recurrence AnxietyOne of the hardest parts of living with bladder cancer is dealing with the fear of your cancer coming back (recurrence). Unfortunately, people who have had bladder cancer have a...Reactions0reactionsComments34 comments
5 Years Living with a Stoma: 5 Lessons LearnedI have been living with my stoma, Winnie, for just going on for 5 years now. Here are the top 5 things I have learned about myself and Winnie. Never...Reactions0reactionsComments1 comments
Newbie out of denialI was diagnosed a bit over a year ago. Immediate Turbt surgery followed by six sessions of Gemzar (Gemcitabine). Not the most pleasant experience. Not thinking other than "well that's...Reactions0reactionsComments5 comments
It's Almost Time: Year 13 of the NC Bladder Cancer RetreatMay is Bladder Cancer Awareness Month and the perfect time to spread the word again about a fantastic event for bladder cancer survivors and caregivers. I can't believe that in...Reactions0reactionsComments2 comments
The Cystoscopy ExperienceA cystoscopy is a standard procedure used in both diagnosing bladder cancer and the surveillance of any bladder cancer recurrence. The scope, as it is often referred to, can conjure...Reactions0reactionsComments0 comments
Double Trouble – The Road to Two OstomiesMy bladder cancer journey is quite unique. My bladder cancer diagnosis was stage 4 invasive squamous cell carcinoma. This is a rare form of bladder cancer. My specialist doctor advised...Reactions0reactionsComments0 comments
Completing Gemcitabine Induction Therapy: Week 6I haven't cried in years. I mean, I have not had a good gut-wrenching belly-aching cry in a long time. But I have needed it. I have needed what is...Reactions0reactionsComments9 comments
BCG and Everything You Need to Know About ItBacillus Calmette-Guerin (BCG) continues to be one of the most common treatments for non-muscle invasive bladder cancer. This type makes up the majority of bladder cancer cases each year. From...Reactions0reactionsComments1 comments
My Journey with Medicinal Cannabis: Symptom ManagementWhere do I start? I really don't know how to start this article however, I feel that I need to write a bit of background history so you can understand...Reactions0reactionsComments2 comments
More Than An OstomateWho am I? I am what is known in the ostomy community as a double bagger. That is someone with two ostomy bags. I have a colostomy and a urostomy...Reactions0reactionsComments0 comments
Agent Orange or contaminated water?I was diagnosed in October 2020 with non-invasive bladder cancer. I’ve had 6 surgeries to remove tumors and have also had BCG treatment. We are not sure if it’s from...Reactions0reactionsComments6 comments
