Navigating Transportation Barriers to Cancer CareDifferent treatments and appointments are a part of fighting cancer. But keeping up with these commitments can be quite hard. Studies show that 1 of the biggest hurdles can be...reactions3comments
Back From a TURBT: Caregivers and CathetersMom's second attempt and first successful transurethral resection of a bladder tumor occurred about 10 days after the first unsuccessful attempt. I was so unbelievably nervous on the way to...reactions9comments
Bladder Cancer: Effects on Those Around UsWhen your world is turned upside down after hearing the "C" word at a diagnosis consultation - it also rocks the world of those around you. Those closest to you...reactions2comments
TURBT Is an Acronym I Know Too WellIt seemed like no time from when we finally got Mom's bladder cancer diagnosis that she was scheduled for the first surgery. The very word surgery made my skin crawl...reactions7comments
How I Will Spread the Word this Bladder Cancer Awareness MonthThe biggest goal of any advocate, and for many patients too, is to spread the word. This is never truer than with bladder cancer. Why is that? Well, I may...reactionscomments
A Guide for Navigating Recurrence AnxietyOne of the hardest parts of living with bladder cancer is dealing with the fear of your cancer coming back (recurrence). Unfortunately, people who have had bladder cancer have a...reactions34comments
5 Years Living with a Stoma: 5 Lessons LearnedI have been living with my stoma, Winnie, for just going on for 5 years now. Here are the top 5 things I have learned about myself and Winnie. Never...reactions1comment
It's Almost Time: Year 13 of the NC Bladder Cancer RetreatMay is Bladder Cancer Awareness Month and the perfect time to spread the word again about a fantastic event for bladder cancer survivors and caregivers. I can't believe that in...reactions2comments
The Cystoscopy ExperienceA cystoscopy is a standard procedure used in both diagnosing bladder cancer and the surveillance of any bladder cancer recurrence. The scope, as it is often referred to, can conjure...reactionscomments
Double Trouble – The Road to Two OstomiesMy bladder cancer journey is quite unique. My bladder cancer diagnosis was stage 4 invasive squamous cell carcinoma. This is a rare form of bladder cancer. My specialist doctor advised...reactionscomments
Completing Gemcitabine Induction Therapy: Week 6I haven't cried in years. I mean, I have not had a good gut-wrenching belly-aching cry in a long time. But I have needed it. I have needed what is...reactions9comments
BCG and Everything You Need to Know About ItBacillus Calmette-Guerin (BCG) continues to be one of the most common treatments for non-muscle invasive bladder cancer. This type makes up the majority of bladder cancer cases each year. From...reactions1comment
My Journey with Medicinal Cannabis: Symptom ManagementWhere do I start? I really don't know how to start this article however, I feel that I need to write a bit of background history so you can understand...reactions2comments
More Than An OstomateWho am I? I am what is known in the ostomy community as a double bagger. That is someone with two ostomy bags. I have a colostomy and a urostomy...reactionscomments
My 2022 Thoughts on Bladder Cancer Awareness MonthThis year is my 5th Bladder Cancer Awareness Month. In August, I will be 6 years from my diagnosis. At this time of year, I go through a lot of...reactions2comments
Bladder Cancer Awareness Month 2022May is Bladder Cancer Awareness Month! This awareness month, we are calling on the power of community and storytelling to illuminate the realities of bladder cancer. Unfortunately, we know how...reactions2comments
Can You Prevent a Parastomal Hernia?Anyone with a stoma can get one; I have heard it said that 1 in every 2 people with an ostomy will at some point develop a parastomal hernia. It...reactions1comment
The Final Chapter and How It Plays OutLet me preface this by saying that I am not trying to be maudlin or have this be a "downer" article. This is written with the best of intentions and also...reactions10comments
The Financial Toxicity of Cancer TreatmentCancer drugs are essential for people with cancer. These drugs can help some live longer without the cancer spreading. However, these drugs come with a high price tag. This can...reactions10comments
The Right Book at the Right TimeA theme that has run consistently through my cancer journey has been timing. Everything has always happened in timing that has been eerily just the way it needed to happen...reactions2comments