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Read conversations, start a discussion, and connect with others about bladder cancer.

Urostomy bag

Leaking bag 13 times in a week. What could be wrong...

6 months since my neobladder surgery

In two weeks, it will be 6 months since my neobladder surgery. I am still experiencing pain and discomfort in the area of the operation. My inner thighs are still...

Query Bladder Cancer

Hi Everyone, Had pain during urination since 2015 and was diagnosed with Insterstitial Cystitis in May 2017 where they took a biopsy. Been treated for IC but nothing worked so...

Urostomy difficulties

Has anyone using leg bag for daily activities...bcoz my mom is forgetting to emptying the urostomy pouch...is it better to use leg bag for day time??? Can anyone suggest me...

Is it normal or OK to wait six weeks before BCG therapies

I had originally thought I had a kidney stone. Only slight blood in urine for a few weeks. GP suggested ultrasound and found 2cm urothelial tumor. I had my surgery...

Incontinence and constipation after TURBT

Hello, 74 y.o. man here. Had a 7cm tumor removed from my bladder on 12/18 and finally released from hospital on 12/22. Within a few hours of being home, I...

is there anyone who is a dietician in the Carolinas?

I am looking for a dietician who lives in the Carolinas and had or is currently dealing with bladder cancer preferably....

Had 3 immunotherapy treatments instead of 6

Tumor was removed in December but first biopsy was inconclusive as to whether it went into the muscle wall of the bladder. Second surgey took a deeper sample of muscle...

Cancer Recurrence

I had a radical cystectomy in November of '23 followed by 12 months of immunotherapy (novolumab). My diagnosis was muscle invasive bladder cancer, which once my bladder was removed, it...

new overwhelmed

I m not sure what to do here so I guess I just start posting. Im 72 just got told have cancer in bladder. Have to set up different scans...

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