DiagnosisHello. Had gross heamaturia and clots all one morning, gradually tailed off during the day and had one funny looking worm like thing since. Report on sample said no infection...Reactions0reactionsComments14 repliesCystosopy & ScreeningDiagnosis
Life changing surgery43 year old male diagnosed July 2022. Done the chemo and radiation but time to make that hard call to have the bladder removed which I have been advised is...Reactions0reactionsComments6 replies
Nomination and Endorsements for Health AwardsThanks for the nomination, now I need your support to endorse me. This is the last stage before it goes to the judging panel 🙌🏼 thanks so much. You just...Reactions0reactionsComments0 replies
New to this and terrifiedSo maybe 6 months ago I went to the dr and he found a trace of RBC in urine, let it go. I don't go to drs very often so...Reactions0reactionsComments22 replies
Abdominal pain/discomfortFor the past few days I have been experiencing abdominal pain and discomfort. It's been almost 2 months since my RC. I had some issues before the surgery but I...Reactions0reactionsComments2 replies
BCG treatment Would like opinions on this treatment do you think it helped was it awful or not so bad and those that did complete the treatment did most people not have...Reactions0reactionsComments2 repliesCoping
Just had second bladder procedure to remove 4 more tumors and have BCG question I’m so fortunate that the five tumors I have had removed were not in the wall. After my last procedure I also received a BCG treatment. Days two thru four...Reactions0reactionsComments20 repliesNewly DiagnosedSide EffectsTreatment
Social Health Awards Nominee I’m thrilled to announce that I’ve been nominated for the #SocialHealthAwards. Thank you to my community for this honor. Please visit my Patient Leader profile to learn more about my...Reactions0reactionsComments0 repliesAwareness
Swelling and pain in the feet?I’m newly diagnosed, high-grade non-invasive. I underwent a TURBT 5 days ago, and just yesterday my left foot began hurting to an almost unbearable degree. Now this morning it is...Reactions0reactionsComments12 replies
Should I have a cystectomy?Diagnosed 6/30/2016 with bladder cancer. After initial chemotherapy, right kidney and ureter removed. Multiple BCG cycles, cystoscopies, TURBTs, clinical trial and still have high grade CIS. Further treatment or RC?...Reactions0reactionsComments2 repliesSurgery