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Read conversations, start a discussion, and connect with others about bladder cancer.

Bladder removal v radiotherapy/chemotherapy

Goodmorning could I ask if anyone has had thier bladder removed and how did they find the process during and after surgery! My husband may have to have his removed...

Concerned

I'm new to this so please forgive the errors I had a Radical Cysoctomy about 18 months ago. Things are getting back to normal except I continue to have some...

New & Scared

Hi everyone! My little tumor was discovered this week & my TURBT surgery is scheduled for Tuesday. I’m a 39 year old female (non smoker) & I have 3 kiddos...

Neo Bladder

I am a female and had my Neo Bladder surgery 6 years ago. Recovery was uncomplicated and tedious. Wore a catheter for 7 weeks afterward. For six years I leak...

Raw Skin around Stoma

Following diagnosis of bladder cancer I had an ileal conduit in June 2011. During the last couple of years the skin around my stoma has become red, raw & bloody...

Pathology

I recently got my pathology report which seems to contradict itself. One bullet point says - noninvasive low-grade papillary urothelial carcinoma…….but then below that it says Muscularis propria present. My...

Immunotherapy

Has anyone used Opdivo for squamous cell bladder cancer and do you feel the cost is worth it? I have my bladder and prostate removed and was diagnosed with T3a...

UTI in ileal Conduit

My mom underwent RC three months back..now she is suffering from UTI...how to prevent uti in urostomy...

Indiana pouch

I have had Indiana pouch now for 18 years I feel now I am getting a lot of mucas not getting a lot out of catheter had a lot of...

Learning as I go...

Diagnosed with MIBC on 26 April2023. MRI and CT for earlier TURBT showed cancer only in my bladder. Referred to highly regarded university hospital, first appt. 15 May, with Surgeon...

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