upcoming robotic surgery for ileal conduitDiagnose with bladder cancer in November. completed 2nd turbt Jan 7th. 1st turbt they took out quite a bit of cancer, ta hg. @nd turbt they trimmed my enlarged prostrate...Reactions0reactionsComments34 repliesAssistive DevicesSurgeryNeobladderResearch & Clinical TrialsTips & Advice
Scared witless Hello. I have not yet been diagnosed but ... I had a lot of blood and I mean a lot and also some clots. Went to see GP who sent...Reactions0reactionsComments16 replies
ROBOTIC ASSISTED LAPAROSCOPIC RADICAL CYSTECTOMY I am scheduled to get my ROBOTIC ASSISTED LAPAROSCOPIC RADICAL CYSTECTOMY in two more days. (2/15/23) I am absolutely terrified!!! I have been through so much already. I have had...Reactions0reactionsComments9 repliesUrostomySurgery
1st night away from homeI'm a little over 2 months out from surgery. We went on our first overnight stay away from home. Went to Marion Virginia to see one of our favorite bands...Reactions0reactionsComments2 replies
BCG Treatment QuestionI've been given options of BCG treatment or cystectomy for T1 high grade. I'm waffling between them. I understand that if I choose BCG treatments, I need to add bleach...Reactions0reactionsComments17 repliesResearch & Clinical TrialsTreatmentSide EffectsTips & Advice
Having a cystoscopy tomorrow and shakin lie a leafstroke survivor, taking xerelto and have blood in my urine . Urologist says if he sees somthing it would be small and he would just scrape it off. looked at...Reactions0reactionsComments5 repliesMental Health
Huge decision to make regarding next treatmentHi all. I am 71 and have been dealing with MIBC stage 3, plasmacytoid variant since July 2022. I had 6 cycles of chemo, gemcitabine / cisplatin, that ended 12/28...Reactions0reactionsComments4 repliesSecond OpinionSurgeryTreatment
Life without a bladderI spent 11 days in the hospital following y Radical Cystectomy. 2 days after getting home we had a major ice storm in Austin Texas that knocked the power down...Reactions0reactionsComments11 replies
two uologistsFirst one said no evidence of G U malignacy and the second said scans did not show him anthing. Cystscopy in the morning. So scared...Reactions0reactionsComments5 repliesHealthcare TeamDepression
reassuranceGood news is cytology came back negative, cat scan was all good, urologist said abdomen and pelvis scans were boring, which is good but wants to do s cystoscopy on...Reactions0reactionsComments2 repliesCystosopy & Screening