bladder cancer survivorDoes this group talk much about bladder cancer from a survivors point of view. I have already done all the torturous procedures you can think of and now I have...Reactions0reactionsComments5 repliesUrostomy
Advice to the Newly DiagnosedWhat advice would you give to someone who has just been diagnosed with bladder cancer?...Reactions0reactionsComments8 repliesTips & Advice
treatment successFollowing a January diagnosis of NMIBC, two turbts, a six week course of BCG, a cysto that showed red patches, I am elated to report my good news. My doctor...Reactions0reactionsComments8 repliesTreatment
Can someone help with FISH results?I have had negative, positive, negative positive and then this: URINE NEGATIVE FOR HIGH-GRADE UROTHELIAL CARCINOMA (NHGUC). REACTIVE UROTHELIAL CELLS ARE PRESENT...Reactions0reactionsComments2 repliesDiagnosis
Thought I was curedI first was diagnosed with bladder cancer at 49 years and had surgery to remove a posterior TCC which I believe is called something else now. After surgery I ended...Reactions0reactionsComments23 replies
Black specs in urineI do not have a diagnosis. Has anyone experienced black flakes in their urine? It started months ago maybe a year. It was only every few weeks. Then every week...Reactions0reactionsComments3 repliesAwareness
Post BCG I completed 6 weeks of induction intravescical BCG for CIS bladder, first look up cystoscopy scheduled for 2nd week of June , its been 10 days post my last BCG...Reactions0reactionsComments14 replies
Preparing for Maintenance TreatmentMy follow-up cysto after 6 weeks of treatment and 6 weeks rest revealed no cancer in the bladder. That was great news! However, I'll be starting the first round of...Reactions0reactionsComments5 repliesSide EffectsNED/RemissionTreatment
General questions; I am 2 months along with urostomyI had my surgery ( Radical cystoprostatectomy with ileal conduit) on April 26, 2022. I would like some feedback from other members, please. Firstly, is there a preference for one...Reactions0reactionsComments13 repliesUrostomyTips & Advice
New patientI had coke colored urine. My primary sent me to a urologist. He ordered a CT which showed an 8mm density. I then had a cystology and was told I...Reactions0reactionsComments2 repliesSurgeryTips & Advice