You Too Can Ooze Ostomy ConfidenceDo you remember hearing the words ostomy, stoma, urostomy, or ileal conduit? I can bet many of you, like me, had never heard of them or knew what they were... By Laura MacKenzie3 min readBookmark for laterReactions0reactionsComments0 comments
The Guilt of Good HealthWhen my mother was diagnosed with stage 3 bladder cancer, I was studying abroad. Being so far apart when receiving the news of her diagnosis was definitely a challenging time... By Phil Norris3 min readBookmark for laterReactions0reactionsComments0 comments
Empowerment, Empathy & UnderstandingEmpowerment. What does it mean? At its core, empowerment enables individuals or groups to gain greater control over their lives, making decisions that positively affect their well-being. But for someone... By Phil Norris3 min readBookmark for laterReactions0reactionsComments1 comments
A Demonstration of True FriendshipAfter my radical cystectomy (RC), I experienced quite a few complications and spent a significant amount of time in a rehab facility. Due to staffing issues, I could not get... By Liz Hiles3 min readBookmark for laterReactions0reactionsComments4 comments
The Power of WordsAs a family we’ve always been a pretty positive bunch. Growing up, our house was always one filled with laughter and jokes, sarcasm and satire. No one was exempt from... By Phil Norris4 min readBookmark for laterReactions0reactionsComments1 comments
My 8th Annual Urologist Follow-Up: Bladder Cancer Takes and ThoughtsThe night before, my wife and I talked a little about my visit today. I told her this was the most humiliating of all my follow-ups, and I've had a... By Dan Franke4 min readBookmark for laterReactions0reactionsComments4 comments
The 14th Annual North Carolina Bladder Cancer RetreatWe all need support and to not feel alone. When I read of cancer patients who feel alone because they are not comfortable sharing their story with others, or because... By Linda Urbanski4 min readBookmark for laterReactions0reactionsComments1 comments
Packing for a Cruise With an OstomyI am finally going on my first big trip since being diagnosed with bladder cancer - a 1-week cruise to the Virgin Islands. I am so excited, but also very... By Brittney Tellekamp2 min readBookmark for laterReactions0reactionsComments6 comments
What Can You Do Without a WOCN Near YouHaving been an ostomate for 6 and a half years now and very active in the bladder cancer and ostomy communities, I know that even within the US, wound, ostomy... By Liz Hiles5 min readBookmark for laterReactions0reactionsComments0 comments
Beach Bag ReadyAs winter turns to spring and thoughts turn from spring to summer, many of us will start to think of vacations. If you are new to life with an ostomy... By Laura MacKenzie3 min readBookmark for laterReactions0reactionsComments6 comments
My Journey So FarIn July 2014 I had lumbar fusion surgery and little did I know that in approximately 90 days I would be diagnosed with bladder cancer. As I was preparing to... By volsrider4 min readBookmark for laterReactions0reactionsComments1 comments
1 and a Half Years Cancer FreeI am officially a year and a half cancer free and I really don't know how to feel. Part of me wants to jump for joy and celebrate every day... By Brittney Tellekamp2 min readBookmark for laterReactions0reactionsComments1 comments
Why It's Important to Keep the Advocacy Wheels TurningMy bladder cancer journey began almost 6 years ago. I have developed and grown in this time - grown in many ways. Grown as a patient, grown as an advocate... By Laura MacKenzie3 min readBookmark for laterReactions0reactionsComments0 comments
My Diagnosis Story: A Wild Visit to the Emergency RoomBy the time I got to the front desk and said, "Hey, my hip hurts," my husband was calling me. "Did you just leave the house?"... "Yes"... "Did you tell... By Brittney Tellekamp3 min readBookmark for laterReactions0reactionsComments1 comments
Patient as a PatientBeing a patient - it is not a title we choose or something we choose to enter into. It is forced upon us when our amazing human body stops working... By Laura MacKenzie3 min readBookmark for laterReactions0reactionsComments0 comments
Sharing The Word: Raising Awareness of Bladder CancerToday was a good day. Through a UK Bladder Cancer Charity, I was approached to do a talk, and that talk was today. It was to talk to a patient... By Laura MacKenzie3 min readBookmark for laterReactions0reactionsComments1 comments
My Diagnosis Story: Strange SymptomsBeing a young woman diagnosed with bladder cancer, the thing I'm most often asked is, "How did it happen?". I've told my diagnosis story many times, and each time I... By Brittney Tellekamp3 min readBookmark for laterReactions0reactionsComments6 comments
Why We Need Awareness MonthSocial media has changed our lives in many ways. Many for the good but, of course, in other ways less positively. On the one hand, it is a great way... By Laura MacKenzie3 min readBookmark for laterReactions0reactionsComments0 comments
Bladder Cancer Awareness - How Do We Spread the Word?Most of us can probably say that we had never heard of bladder cancer before being diagnosed. Why is that? We constantly hear about other forms of cancer - breast... By Linda Urbanski3 min readBookmark for laterReactions0reactionsComments0 comments
Part 2 of Bladder ExamWell, today I received my transurethral resection of a bladder tumor (TURBT). IV went in easy, they briefed me and then I got the good stuff. I don't remember anything... By Xtbird1 min readBookmark for laterReactions0reactionsComments28 comments