A Guide for Navigating Recurrence AnxietyOne of the hardest parts of living with bladder cancer is dealing with the fear of your cancer coming back (recurrence). Unfortunately, people who have had bladder cancer have a... By Editorial TeamBookmark for later Reactions 0 reactions Comments0 comments
5 Years Living with a Stoma: 5 Lessons LearnedI have been living with my stoma, Winnie, for just going on for 5 years now. Here are the top 5 things I have learned about myself and Winnie. Never... By Shirley NorrisBookmark for later Reactions 0 reactions Comments1 comments
Newbie out of denialI was diagnosed a bit over a year ago. Immediate Turbt surgery followed by six sessions of Gemzar (Gemcitabine). Not the most pleasant experience. Not thinking other than "well that's... By CommunityMember122Bookmark for later Reactions 0 reactions Comments1 comments
It's Almost Time: Year 13 of the NC Bladder Cancer RetreatMay is Bladder Cancer Awareness Month and the perfect time to spread the word again about a fantastic event for bladder cancer survivors and caregivers. I can't believe that in... By Linda UrbanskiBookmark for later Reactions 0 reactions Comments2 comments
The Cystoscopy ExperienceA cystoscopy is a standard procedure used in both diagnosing bladder cancer and the surveillance of any bladder cancer recurrence. The scope, as it is often referred to, can conjure... By Editorial TeamBookmark for later Reactions 0 reactions Comments0 comments
Double Trouble – The Road to Two OstomiesMy bladder cancer journey is quite unique. My bladder cancer diagnosis was stage 4 invasive squamous cell carcinoma. This is a rare form of bladder cancer. My specialist doctor advised... By Laura MacKenzieBookmark for later Reactions 0 reactions Comments0 comments
Completing Gemcitabine Induction Therapy: Week 6I haven't cried in years. I mean, I have not had a good gut-wrenching belly-aching cry in a long time. But I have needed it. I have needed what is... By Jacqueline HarmonBookmark for later Reactions 0 reactions Comments5 comments
BCG and Everything You Need to Know About ItBacillus Calmette-Guerin (BCG) continues to be one of the most common treatments for non-muscle invasive bladder cancer. This type makes up the majority of bladder cancer cases each year.1 From... By Editorial TeamBookmark for later Reactions 0 reactions Comments1 comments
My Journey with Medicinal Cannabis: Symptom ManagementWhere do I start? I really don't know how to start this article however, I feel that I need to write a bit of background history so you can understand... By Anita BrownBookmark for later Reactions 0 reactions Comments2 comments
More Than An OstomateWho am I? I am what is known in the ostomy community as a double bagger. That is someone with two ostomy bags. I have a colostomy and a urostomy... By Laura MacKenzieBookmark for later Reactions 0 reactions Comments0 comments
Agent Orange or contaminated water?I was diagnosed in October 2020 with non-invasive bladder cancer. I’ve had 6 surgeries to remove tumors and have also had BCG treatment. We are not sure if it’s from... By SkipSBookmark for later Reactions 0 reactions Comments1 comments
My 2022 Thoughts on Bladder Cancer Awareness MonthThis year is my 5th Bladder Cancer Awareness Month. In August, I will be 6 years from my diagnosis. At this time of year, I go through a lot of... By Liz HilesBookmark for later Reactions 0 reactions Comments1 comments
The value of second opinionsI was diagnosed with muscle-invasive bladder cancer in January. My healthcare network was very good about getting me into chemo, and a referral for bladder removal out-of-network. I didn't like... By WesternGuyBookmark for later Reactions 0 reactions Comments2 comments
Bladder Cancer Awareness Month 2022May is Bladder Cancer Awareness Month! This awareness month, we are calling on the power of community and storytelling to illuminate the realities of bladder cancer. Unfortunately, we know how... By JadaWaltonBookmark for later Reactions 0 reactions Comments3 comments
Diagnosed 2-17-22 Part 2Hi to all, I think part one (read here) was getting kind of long so I am starting a part 2. My initial consult went very well, I like the... By zip316Bookmark for later Reactions 0 reactions Comments2 comments
Here's your sign....I went for a fairly short run on the morning of Jul 25, 2021. Afterward, I noticed a bit of blood in my urine. After some searching on the web... By bpoole99Bookmark for later Reactions 0 reactions Comments1 comments
Can You Prevent a Parastomal Hernia?Anyone with a stoma can get one, I have heard it said, that 1 in every 2 people with an ostomy will at some point develop a parastomal hernia.1 It... By Laura MacKenzieBookmark for later Reactions 0 reactions Comments1 comments
Diarrhea- a possible side effect of KeytrudaAs a Stage 4 bladder cancer patient (it had reached lymph nodes in the bladder area), I needed immunotherapy after the chemotherapy, then cystectomy with ileal conduit (determined by the... By emilychBookmark for later Reactions 0 reactions Comments3 comments
The Financial Toxicity of Cancer TreatmentCancer drugs are essential for people with cancer. These drugs can help some live longer without the cancer spreading. However, these drugs come with a high price tag. This can... By Editorial TeamBookmark for later Reactions 0 reactions Comments10 comments
Scar tissue in my ureters post cystectomyAfter chemotherapy, then cystectomy and ileal conduit, I wasn’t quite prepared for what I had read as a possible side effect of the cystectomy- scar tissue in the ureters where... By emilychBookmark for later Reactions 0 reactions Comments5 comments
