Being Nominated for a WEGO Health AwardIn June, an email popped up with the subject line, "Congratulations, you've been nominated!" The first thing I thought was, nominated for...reactions2comments
Space and TimeYou may have noticed a pattern if you have read some of my articles. I write about the mental health side of...reactions2comments
Coming Back AroundIn 2008 at age 55 I was diagnosed with stage IV Prostate Cancer, heart attack in 2010, bladder cancer diagnosed in 2015...reactions7comments
BCG or UTI?Have you recently started BCG treatments for non-invasive bladder cancer? There are many possible side effects of this treatment: The common theme...reactions3comments
The Need for SpeedThe rapidity of my admission and bladder cancer surgery was an eye-opening experience. I had a cystoscopy and biopsy then set a...reactions2comments
Ask the Advocate: Advice around Reconstructive Bladder SurgeryWe asked the ostomates among our patient leader team, "what advice would you give someone who was feeling unsure about reconstructive bladder...reactions1comment
Perks of Being an OstomateTwo years ago I would have said there was absolutely nothing positive about having a urostomy. It was uncomfortable, always a hassle...reactions11comments
Handling Awkward Questions from Children About an OstomyI became a Nana this year to the gorgeous Jackson James, but I have been a step-Nana for over a year, and...reactions6comments
Jacquie's story: a bladder cancer survivorMy story with bladder cancer began in 2005, at age 47. I began having symptoms similar to those of a urinary tract...reactions1comment
Getting HelpOne thing I wish I had understood earlier in my cancer journey (and life in general) is it is OK to not...reactions6comments
Speaking at the Bladder Cancer RetreatBack in September, I had the absolute honor of speaking at the 2021 North Carolina Bladder Cancer Retreat. It was incredibly exciting...reactions1comment
Setting BoundariesWhen I started sharing my story online, I never anticipated just how many people would start following along. In just a few...reactions1comment
Cancer, Conversation, and LanguageVictim. Sufferer. Fight. Fighter. Brave. Beaten. All words associated with cancer. My question is - do we have this all wrong? It...reactions4comments
Using a Co-Pay Assistance ProgramImmunotherapy is an incredibly expensive cancer treatment. On average, it can cost a patient over 100,000 dollars per year in drug costs...reactions1comment
My Thoughts on Raising Ostomy AwarenessIronically, when I received my bladder cancer diagnosis, I had already been advocating and doing awareness campaigns around the topic of ostomies...reactions1comment
Preparing for a Cystectomy: The Practical PieceIf you are reading this article and you are going to be having a cystectomy surgery or have the surgery already scheduled...reactionscomments
Is it Normal or is it Cancer?We have all been there. You're in active treatment or maybe even NED (no evidence of disease). One day you feel a...reactions2comments
A 5-Year Cancerversary: Resilience and Small Cell Bladder CancerFIVE YEARS, FÜNF JAHRE, CINQ ANNÉES. It doesn't matter how you write it. It is MY 5th-year anniversary of diagnosis, with this...reactions9comments
Spoon Theory for Bladder CancerHaving been in the chronically ill health circles for years in varying capacities, I am still surprised that more people are unfamiliar...reactions5comments
Medical Menopause, Vulvovaginal Atrophy, and Bladder CancerAs I was looking through the research, I noticed many articles mentioning the high level of sexual dysfunctions in women that were...reactions2comments
