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Read conversations, start a discussion, and connect with others about bladder cancer.

Painful bladder

I have posted here in the past about this very subject. Last May I had a cystoscopy after having 15 BCG instillations starting in 2020. The nurse who carried out...

Support for an ileostomy pouch.

Can anyone advise me on the above. I like to walk at least 4miles per day and also fly - fish in the river, so wading on pebbles and undulating...

urine cytology

Has anyone ever had a cystoscopy that showed NED only to have their urine cytology come back suspicious or positive? I know it can happen, but I'm trying to get...

Leaking after neo bladder

I’m a male that had a neo bladder surgery back in November of 19 but still at night when my body relaxes I leak very very bad anyone have similar...

NEO BLADDER LEAKING

I am 71 and entering my 5th month after having RC surgery and a neo bladder. I spoke to several men who had this surgery prior to doing it and...

Bloating after radical cystectomy

Is there any medication my husband can use for bloating 8 days after a radical cystectomy...

Risk and Learning Help Please

1st - All of you are heroes. I have been reading your stories and am inspired. Honestly, incredibly brave stories I am reading. 2nd - Apologies in advance but looking...

BCG treatment

I'm starting treatment Wednesday. I have an active bladder problem. My treatment will be 1/2 hour after that I will go home. It is a 1-1.25 hour drive. I'm concerned...

Bcg nurse said go have a coffee

Why should you drink coffee or have caffeine when that can cause bad side effects? 1st BCg. Only help it for 1.5 hours. Was told it doesn't matter. I also...

Was t1 once a CIS or TIS

Do all t1 start off as a Cis? And for a Cis to get to t4 does it always become t1 t2 t3 first. I'm so sorry it's probably a...

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