6 months since my neobladder surgery In two weeks, it will be 6 months since my neobladder surgery. I am still experiencing pain and discomfort in the area of the operation. My inner thighs are still...Reactions 0 reactions Comments1 replies
Query Bladder CancerHi Everyone, Had pain during urination since 2015 and was diagnosed with Insterstitial Cystitis in May 2017 where they took a biopsy. Been treated for IC but nothing worked so...Reactions 0 reactions Comments1 replies
Urostomy difficulties Has anyone using leg bag for daily activities...bcoz my mom is forgetting to emptying the urostomy pouch...is it better to use leg bag for day time??? Can anyone suggest me...Reactions 0 reactions Comments33 repliesCaregiving
Is it normal or OK to wait six weeks before BCG therapiesI had originally thought I had a kidney stone. Only slight blood in urine for a few weeks. GP suggested ultrasound and found 2cm urothelial tumor. I had my surgery...Reactions 0 reactions Comments1 repliesNewly DiagnosedTreatment
Incontinence and constipation after TURBTHello, 74 y.o. man here. Had a 7cm tumor removed from my bladder on 12/18 and finally released from hospital on 12/22. Within a few hours of being home, I...Reactions 0 reactions Comments5 repliesNewly Diagnosed
2 Years Clear Low Grade T0 - blood in urine after strenuous exerciseHowdy, I found myself straining excessively to complete my last set of military press reps on a machine at Planet Fitness yesterday. When I got home I had to urinate...Reactions 0 reactions Comments3 repliesExerciseSymptoms
is there anyone who is a dietician in the Carolinas?I am looking for a dietician who lives in the Carolinas and had or is currently dealing with bladder cancer preferably....Reactions 0 reactions Comments3 repliesDiet & Nutrition
Had 3 immunotherapy treatments instead of 6Tumor was removed in December but first biopsy was inconclusive as to whether it went into the muscle wall of the bladder. Second surgey took a deeper sample of muscle...Reactions 0 reactions Comments1 repliesTreatment
Results documentation for cystoscopy/TURBTI recently underwent a cystoscopy and TURBT procedure to remove a low-grade malignant tumor and will be undergoing quarterly cystoscopies for the next year. What struck me as odd is...Reactions 0 reactions Comments6 repliesCystosopy & Screening
Cancer Recurrence I had a radical cystectomy in November of '23 followed by 12 months of immunotherapy (novolumab). My diagnosis was muscle invasive bladder cancer, which once my bladder was removed, it...Reactions 0 reactions Comments2 replies