When All the Information Out There May Be TMI!I had an RC/IC (radical cystectomy/ileal conduit) in September 2014. I don't think about my bag; it has become a natural part of...reactions2comments
UTIs and Bladder Cancer: How do they relate?Urinary tract infections, also called UTIs, are infections of the urinary system. The most common sites of UTIs are the bladder and...reactions2comments
Cancer: A Hereditary HangoverA cancer diagnosis in the family, I've come to learn, has long-term effects for more than just the patient. In the beginning...reactions4comments
Reclaiming My NormalI have declared 2023 as the year I will reclaim my normal. In 2019 I was diagnosed with what should have been...reactions1comment
Truly Loving My Birthday Once AgainTo anyone who knows me well, I have always loved birthdays. I am writing this a few days before my 46th birthday...reactions3comments
Biomarker Research for Bladder CancerBecause cancer is caused by changes in DNA and genes, current cancer research is largely focused on understanding those changes. Scientists have...reactionscomments
The TURBT Before Chemo2021 rang in as most New Year's do. Instead of silly resolutions, we would forget days or weeks later, Mom and I...reactions2comments
The BCG Shortage In AmericaIn early 2019, news of a shortage of a bladder cancer treatment called BCG started circulating. In this year’s Bladder Cancer In...reactions3comments
New Clinical Trial Sparks Hope for Those with Metastatic Urothelial CarcinomaA clinical trial led by drug company G1 Therapeutics will look at a new combination of chemotherapy drugs to treat locally advanced...reactionscomments
Learning Your Urostomy: The Early Days Post-CystectomyI am just writing this after getting up this morning. My morning is probably very similar to anyone else's: having a shower...reactionscomments
The Pandemic Gap and Bladder CancerSince March 2020, there has been a steady flow of news about the COVID-19 pandemic's impact on healthcare. Doctors, nurses, and people...reactions4comments
Discover Your Clinical Trial OptionsSearching for a clinical trial for bladder cancer can feel stressful and overwhelming, but connecting to clinical trials is now easier than...reactionscomments
Not Always a Placebo! Types of Clinical TrialsWhen many people think of clinical trials, they may think of testing a new experimental drug or taking a placebo pill. But...reactionscomments
Clinical Trial ParticipationEvery clinical trial is designed to look at a specific population, so each participant is required to have certain traits (eligibility criteria)...reactionscomments
Practical Advice For Your Clinical Trial SearchPatients often hear a lot about the importance of clinical trials as a means of finding new treatments for bladder cancer. Less...reactions1comment
Will I Need to Pay to Be in a Clinical Trial?Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous...reactionscomments
The Clinical Trial Consent Form: Understanding Your Rights & ResponsibilitiesInformed consent is the term that signifies a person has been given information regarding all possible consequences for a treatment, including both...reactionscomments
Clinical Trial TerminologyThere are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable...reactionscomments
Understanding Clinical TrialsA clinical trial is a research study that is conducted to determine whether a specific medical intervention, such as a treatment, device...reactionscomments
Genetic & Genomic Testing: What I LearnedHave you thought about cancer genetic testing, has your doctor mentioned it, or have you even heard of cancer genetic testing? I...reactions2comments