HOW LONG HURTING AFTER TUMORS TAKING OUT....BURNS BAD AT THE START OFF PEEING...Reactions 0 reactions Comments1 replies
Reoccurring kidney stones ...Had bladder removal six years ago and have developed kidney stones in the last three years. Just wondering if there is anyone that has had this and what they have...Reactions 0 reactions Comments1 replies
tips for dealing with radiation/chemo combination treatment...I have recurrence of bladder cancer from 18yrs ago! This time it's high grade and muscle invasive. Will be undergoing 4wk, every weekday radiation combined with chemotherapy. Looking for advice...Reactions 0 reactions Comments1 replies
Just diagnosed with high grade Stage 1 (maybe 2?) Bladder Cancer -- Trying to decide between conservative and aggresive treatment...Imaging a couple of months ago found a 2.5cm mass in my bladder which turned out to be a papillar tumor , and the pathology from my TURBT a week...Reactions 0 reactions Comments19 repliesNewly DiagnosedDiagnosisCoping
The Power of Words...As a family we’ve always been a pretty positive bunch. Growing up, our house was always one filled with laughter and jokes, sarcasm and satire. No one was exempt from... By Phil Norris4 min readBookmark for laterReactions 0 reactions Comments1 comments
Newly Diagnosed ...Scared 53 year old male T2 muscle invasive never smoked - any support groups or people that have gone though ? I’m meeting Fred Hutch team in Seattle on Tuesday...Reactions 0 reactions Comments1 replies
BCG: Don't believe everything you read on-line....I just completed 6 weeks of BCG. When I started, I was petrified. Not just because I had cancer, but because of the side effects I read about. I'd just...Reactions 0 reactions Comments2 repliesTreatmentSide Effects
Pathology...Received first pathology report after first turbt. No letter grading at all or is that second turbt?? I’m 1 week post turbt. Mine is High grade. No muscle involvement. I...Reactions 0 reactions Comments4 repliesDiagnosis
Not really sure what to do here....Aloha, a team member question I think, however if someone can answer please do. I had my TURBT two weeks ago an I’m now getting ready for my first BCG...Reactions 0 reactions Comments9 replies
What to do about negative consequences of surgery...Two years ago I had a cystectomy. Consequences: Gut discomfort is normal with daily stabs of pain Ostomy site is herniated with a semi hemispherical bulge like a portion of...Reactions 0 reactions Comments1 replies
ADSTILADRIN - gene therapy...Hi - Has anyone tried ADSTILADRIN? I am currently NED on Keytruda, I’ve been on it for 1 year and NED since my first 6 week Cystoscopy check up, insurance...Reactions 0 reactions Comments0 replies
Fiance has male bladder cancer ...My name is josette My fiance harry has bladder cancer. We are trying to find out some information because 1st He is doing chemotherapy 2nd the doctor told him that...Reactions 0 reactions Comments2 replies
Weight loss during treatments ...I had let myself gain too much weight prior to being diagnosed about 18 months ago. Doc says my tumors are "superficial" but keep returning after 2 rounds of chemo...Reactions 0 reactions Comments3 replies
Recurrent UTI'S for a year, Cystoscopy will happen Monday....I'd love to hear from all of you about your experiences. I have had trace Blood found in Urine. What is the Cystoscopy like, will it hurt, I'm doing it...Reactions 0 reactions Comments5 repliesCystosopy & Screening
Retention of chemo strategies...Hi. My Turbt was done and I had chemo into bladder same day. Tumor returned. I had another TURBT plan was 6 weeks of Chemo into bladder. I cannot hold...Reactions 0 reactions Comments3 repliesAssistive DevicesCoping
New to bladder cancer...Just had turbt & waiting for biopsy results. Dr said he believed it was caught very early. Was having a cystoscopy for a stubborn kidney stone in my bladder. Only...Reactions 0 reactions Comments5 repliesDiagnosis
Anxiety about bladder removal ...Hi team, My undergone rc six months back.but she is suffering from anxiety now...I don't know how to resolve this...did anybody faced post op anxiety???...Reactions 0 reactions Comments1 replies
Wounds around stoma ...Hi... anyone facing peristomal wounds???my mom faced two months back we have used barrier cream and ostomy powder then got cured..then started using barrier spray again she got wounds... could...Reactions 0 reactions Comments1 replies
Cxbladder test results ...I got the results of my cxbladder test in the email. I scored a .027 which is in the high category. I have not been able to speak to my...Reactions 0 reactions Comments8 repliesDiagnosis
Signs of bladder cancer?...My husband is 72 yrs old. He has been bleeding for months when he urinates even to the point that he shoots out blood clots when he urinates . He...Reactions 0 reactions Comments26 repliesCystosopy & ScreeningSymptomsTips & Advice