Cancer Recurrence ...I had a radical cystectomy in November of '23 followed by 12 months of immunotherapy (novolumab). My diagnosis was muscle invasive bladder cancer, which once my bladder was removed, it...Reactions 0 reactions Comments2 replies
New here, looking for similar stories...My Significant other has been having gross hematuria for a week. He was started on antibiotics for suspected UTI. He had an ultrasound yesterday which showed suspected urothelial neoplasia with...Reactions 0 reactions Comments1 replies
Tips to manage the bladder scope...I was diagnosed with high grade noninvasive bladder cancer a year ago. Had my second TURBT last week and the tumors were low grade! The difficulty I have is handling...Reactions 0 reactions Comments1 repliesCystosopy & Screening
New Toledo area support group starting ...For anyone in the Toledo Ohio area - there is a bladder cancer support group starting up this week being supported by the Eleanor C Dana Cancer center. I am...Reactions 0 reactions Comments0 repliesCoping
Gross haematuria...I am awaiting tests and have had gross haematuria twice in 10 days , once while I was home and once after the gym which was an hour before my...Reactions 0 reactions Comments4 replies
A Demonstration of True Friendship...After my radical cystectomy (RC), I experienced quite a few complications and spent a significant amount of time in a rehab facility. Due to staffing issues, I could not get... By Liz Hiles3 min readBookmark for laterReactions 0 reactions Comments4 comments
Cytoscopy...I am a 70 year old male with history of BPH that has been controlled ok with med Dutaturide. I generally get up 2-3 times per night to urinate, manageable...Reactions 0 reactions Comments1 replies
urostomy...had neo bladder removed on 11/10/2030 having lots of trouble can some one contact me thanks spike1218...Reactions 0 reactions Comments1 repliesTravelUrostomy
coping ...on nov 10 2023 i had a neo bladder removed and a stoma and ostomy bag installed i have a lot of questions about this i must drain the bag...Reactions 0 reactions Comments1 replies
Incontinence and constipation after TURBT...Hello, 74 y.o. man here. Had a 7cm tumor removed from my bladder on 12/18 and finally released from hospital on 12/22. Within a few hours of being home, I...Reactions 0 reactions Comments5 repliesNewly Diagnosed
BCG treatment ...I just received the last of my 3 maintenance treatments. I had no reaction for the first 6. Now I have flu like symptoms, fever, and terrible knee pain. Very...Reactions 0 reactions Comments1 repliesSide Effects
Great Christmas present ...I received an early Christmas present. I received the results from my CT scan yesterday. I am cancer free for one year!! My creatinine levels have dropped near normal and...Reactions 0 reactions Comments2 repliesCoping
Elected to get bladder removed...Hi everyone, I had a prostectomy a couple years ago, only to be followed up by bladder cancer. The tumors started out low grade non invasive for the first two...Reactions 0 reactions Comments1 replies
TURBT, blood clots, blood thinners...I had the TURBT procedure about three weeks ago, discharged with a catheter. The day before my follow up, I had severe upper back pain with shortness of breath and...Reactions 0 reactions Comments1 replies
Neobladder...wld like to hear the experiences and opinions of others who had had a pouch (neobladder) made for them and what their lives have been like since....Reactions 0 reactions Comments1 repliesNeobladder
Stress and Vitamin Deficiency...After my radical cystectomy, I experienced severe hair loss. Although I did not end up bald, my medical team estimates I lost about 75% of my hair. I had very... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments1 comments
TURBT Hi Grade Urothelial Carcinomo...74 year old healthy male. Had the surgery on 11/8/23. Found a 2.5 cm tumor. Removed and had chemo in bladder same day. In my head I'm wanting the bladder...Reactions 0 reactions Comments2 replies
Ongoing Irritated Bladder after 19 BCG's...I was diagnosed in 2019. T1G3 with CIS. I had 6 weeks mitomycin (lack of BCG), then 6 weeks BDG induction, 3-week maintenance till I had joints flare up after...Reactions 0 reactions Comments1 replies
7 Weeks Since My Neobladder Surgery ...I was wondering if someone could provide me with an average time it takes to heal after neobladder surgery. I had my surgery in early October and had my catheter...Reactions 0 reactions Comments4 repliesNeobladderSurgery
Symptoms of bladder cancer...Having a ct scan tomorrow of my bladder. Have had blood in my urine and pain after I finish urinating. Has anyone had pain at the end of urinating?...Reactions 0 reactions Comments3 repliesSymptoms