Stories

I am a 74 year old woman. I was diagnosed with bladder cancer in December 2016 and I have had persistent Non-Muscle Invasive Bladder Cancer (NMIBC) since then. I have...

The best thing I did after I found what I had bladder cancer, was research the heck out of it. All kinds of sites and hospitals and clinics. So when...

I was diagnosed in November 2018 with high grade bladder cancer. I seen an urologist was booked in for a TURBT 18th Dec bit of a shock had a nervous...

“Just because I wear it well.... ...doesn’t mean it’s not heavy.” This quote from a fellow stomate who frequently posts on Instagram, got right to me. For 3 years now...

I was 47-years old at the first diagnosis of a single non-invasive urothelial carcinoma (NMBIC. It was described as, “Something in your bladder cancer that has to come out so...

So, to make a long story short, back in April of this year, I noticed some blood clots in my urine. I then made an appointment with my urologist and...

Hello everyone, my name is Sylvia and at the of 68, I found out in the worst way possible, that I had bladder cancer. ☹ I retired from working in...

I was diagnosed with bladder cancer in 2014 and dealt with both TURBT procedures and BCG for quite a while. One day a piece of cancer blocked my ureter and...

After having 3 UTIs in 2020, practically very few during my lifetime, I was told I was getting old, etc. In December I noticed blood in my urine, the urologist...

I was diagnosed with stage 3 squamous cell carcinoma of the bladder in March 2020. I was told it was from over catheterizing that my urologist insisted that I had...

Lying in bed this morning, it dawned on me that my penis has taken on important tasks once again.  As I am in my 80's my penis has seen its...

I am a 69 year-old active woman (retired health educator) living in rural Maynard, MA, with my husband of 38 years.  I've always considered myself an extreme lover of life...

First off, my oldest daughter was diagnosed too late with Bladder Cancer in 2018. She passed away in May of 2019. In June of 2019 I experienced blood in my...

My symptoms appeared on 4/7/20, with blood in my urine.  After tests and a biopsy, cancer was confirmed on 5/4. I decided on a study, with BCG and ALT803 (1 per...

The usual symptoms sent me to a urologist; blood in the urine, frequent and uncontrollable urination, painful urination. Dr did a cystoscopy and found three tumors in my bladder. I...

I'm a 74 year-old, healthy and active woman. Well, like so many others, my story began in December 2018 with, first, microscopic, then visible blood in my urine (no pain)...

When I had my first bag change after surgery I thought, this is gross how am I going to cope with this? But me and stomy are getting along lots...

I was peeing blood and it hurt to pee. That was about a year ago, thought I was trying to pass kidney stone. Went a year later, same problems plus...

I was born with Spina bifida. My lesion is L5-S1 which controls the bladder, bowels, and legs. I haven't used my bladder since I was three years old. What I...

My journey with cancer began in the summer of 2019, when I began having bright red blood in my urine. As an older woman, I had the usual bladder urgency...