Long Story- First My Daughter, Then MeFirst off, my oldest daughter was diagnosed too late with Bladder Cancer in 2018. She passed away in May of 2019. In June of 2019 I experienced blood in my... By Keith H.1 min readBookmark for laterReactions 0 reactions Comments2 comments
Long Year with Bladder CancerMy symptoms appeared on 4/7/20, with blood in my urine. After tests and a biopsy, cancer was confirmed on 5/4. I decided on a study, with BCG and ALT803 (1 per... By johnm220001 min readBookmark for laterReactions 0 reactions Comments5 comments
Don’t Panic Until You KnowThe usual symptoms sent me to a urologist; blood in the urine, frequent and uncontrollable urination, painful urination. Dr did a cystoscopy and found three tumors in my bladder. I... By skip20211 min readBookmark for laterReactions 0 reactions Comments4 comments
Transitional Cell Carcinoma - Kidney & Urothelial (Bladder Cancer in Kidney)I'm a 74 year-old, healthy and active woman. Well, like so many others, my story began in December 2018 with, first, microscopic, then visible blood in my urine (no pain)... By chris-in-suncity2 min readBookmark for laterReactions 0 reactions Comments10 comments
Coping with My Stoma after the Radical CystectomyWhen I had my first bag change after surgery I thought, this is gross how am I going to cope with this? But me and stomy are getting along lots... By shakey1 min readBookmark for laterReactions 0 reactions Comments1 comments
Just Diagnosed - Looking for AdviceI was peeing blood and it hurt to pee. That was about a year ago, thought I was trying to pass kidney stone. Went a year later, same problems plus... By marylester1 min readBookmark for laterReactions 0 reactions Comments2 comments
Not Knowing is the Hard PartI was born with Spina bifida. My lesion is L5-S1 which controls the bladder, bowels, and legs. I haven't used my bladder since I was three years old. What I... By steammocha1 min readBookmark for laterReactions 0 reactions Comments4 comments
Living with an Ileal ConduitMy journey with cancer began in the summer of 2019, when I began having bright red blood in my urine. As an older woman, I had the usual bladder urgency... By emilych5 min readBookmark for laterReactions 0 reactions Comments9 comments
Kidney and Ureter Tumors - Deciding About CystectomyLiving with BC since 2014. I’ve had MANY cystoscopies, MANY rounds of BCG and Mitomyocin, and have another cystoscope scheduled on 10/29. Thank God all tumors have been non-muscle invasive;... By kathrynlvw1 min readBookmark for laterReactions 0 reactions Comments9 comments
Bladder Cancer at 28 and Fear of RecurrenceI am 28 years old and have had bladder cancer for 5 months. I have been fighting against cystitis several times a year for 13 years and during this time... By anni1411911 min readBookmark for laterReactions 0 reactions Comments2 comments
Keytruda and Bladder CancerI was diagnosed with noninvasive high grade. Had 6 doses of BCG and had cystoscopy and TURBT. Came back low grade. Had 3 more BCG (why only 3?), scope, and... By bobm1 min readBookmark for laterReactions 0 reactions Comments4 comments
Cancer Before 50 and Surviving a Massive StrokeI smoked since I was in Jr high, I knew it could cause cancer but not me. I was so wrong. At 49 years old I started peeing blood, went... By bassk192 min readBookmark for laterReactions 0 reactions Comments2 comments
Choosing Bladder Restoration: Chemo and RadiationI am 77 yrs & I have been married for 56 years to a retired RN who was an Oncology nurse in the mid 70's. Just prior to Covid, while... By plockh1 min readBookmark for laterReactions 0 reactions Comments2 comments
GOD is Good! In RemissionI am very fortunate compared to some of the stories I have read here. I had a urine test from my primary care doc. He found blood in my urine... By stockmo1 min readBookmark for laterReactions 0 reactions Comments1 comments
Bladder Cancer at Age 45Hi. It all started with a very bad UTI that lasted over ten days. Went back to the GP and had more tests done. Said it was kidney stones as... By vanessa741 min readBookmark for laterReactions 0 reactions Comments1 comments
My Diagnosis and Family History of Bladder CancerI was lucky as a retired RN to recognize an early sign - painless passage of blood in urine - the evening of my 67th birthday last March (2020). By... By ksebert2 min readBookmark for laterReactions 0 reactions Comments1 comments
Treating CIS Recurrence with KeytrudaI posted before about my journey, but wanted to give an update as to my goal of sparing my bladder as long as possible. I was diagnosed in October 2014... By volsrider1 min readBookmark for laterReactions 0 reactions Comments4 comments
Two Rounds of BCG, on to ChemoI had 6 surgeries and 2 rounds of BCG, which has not worked. Was referred to MD Anderson hospital in Jax flat last week, and I chose to try the... By ruthie1 min readBookmark for laterReactions 0 reactions Comments5 comments
Be Your Own Advocate!It seems my diagnosis story is not unique. Primary doctor checks me for a UTI and not finding any infections prescribes medicine for irritable bladder. I am an older woman... By anitac3 min readBookmark for laterReactions 0 reactions Comments6 comments
Former Mechanic Living With Bladder CancerI originally at the end of 2018 was diagnosed with a low grade bladder cancer. It was removed, had 3 monthly checks and on the 4th check up it returned... By hank1 min readBookmark for laterReactions 0 reactions Comments7 comments