Getting HelpOne thing I wish I had understood earlier in my cancer journey (and life in general) is it is OK to not...reactions6comments
Speaking at the Bladder Cancer RetreatBack in September, I had the absolute honor of speaking at the 2021 North Carolina Bladder Cancer Retreat. It was incredibly exciting...reactions1comment
Setting BoundariesWhen I started sharing my story online, I never anticipated just how many people would start following along. In just a few...reactions1comment
Cancer, Conversation, and LanguageVictim. Sufferer. Fight. Fighter. Brave. Beaten. All words associated with cancer. My question is - do we have this all wrong? It...reactions4comments
Using a Co-Pay Assistance ProgramImmunotherapy is an incredibly expensive cancer treatment. On average, it can cost a patient over 100,000 dollars per year in drug costs...reactions1comment
My Thoughts on Raising Ostomy AwarenessIronically, when I received my bladder cancer diagnosis, I had already been advocating and doing awareness campaigns around the topic of ostomies...reactions1comment
Preparing for a Cystectomy: The Practical PieceIf you are reading this article and you are going to be having a cystectomy surgery or have the surgery already scheduled...reactionscomments
Is it Normal or is it Cancer?We have all been there. You're in active treatment or maybe even NED (no evidence of disease). One day you feel a...reactions2comments
A 5-Year Cancerversary: Resilience and Small Cell Bladder CancerFIVE YEARS, FÜNF JAHRE, CINQ ANNÉES. It doesn't matter how you write it. It is MY 5th-year anniversary of diagnosis, with this...reactions9comments
Spoon Theory for Bladder CancerHaving been in the chronically ill health circles for years in varying capacities, I am still surprised that more people are unfamiliar...reactions5comments
Medical Menopause, Vulvovaginal Atrophy, and Bladder CancerAs I was looking through the research, I noticed many articles mentioning the high level of sexual dysfunctions in women that were...reactions2comments
How to Be a Bladder Cancer AdvocateI often talk to others in the bladder cancer communities and people are always curious how I became a bladder cancer advocate...reactions2comments
Who Should be Included in Your Treatment Decisions?Your support team has a variety of people. We probably all know the incredible value of surrounding ourselves with supportive people during...reactionscomments
Updates to UC and NMIBC Bladder Cancer TreatmentIn 2021, the U.S. Food and Drug Administration (FDA) made decisions on several new treatments for bladder cancer. This may help provide...reactions1comment
Medical Records and History - Are They Current and Accurate?When we put our lives in the hands of medical providers, the information gained from our conversations, tests, procedures, surgeries, and prescriptions...reactions1comment
The ScopeThis is the portion of my cancer journey that I remember the least about. I'm sure that I arrived at the hospital...reactionscomments
Subtle Differences Between Stage IIIB and Stage IVI was diagnosed with bladder cancer in August 2016. I had my procedure the following month. Until the end of last year...reactionscomments
5 Years Living with a Stoma: 5 Lessons LearnedI have been living with my stoma, Winnie, for just going on for 5 years now. Here are the top 5 things...reactions1comment
Ask the Advocate: Living with a Urinary DiversionRecently we asked our BladderCancer.net advocates some questions around their pivotal decision to have a radical cystectomy and opt for a urinary...reactionscomments
When Christmas Takes on a Whole New MeaningAsk anyone I know, and they will tell you, I am just a big kid when it comes to Christmas. I have...reactionscomments
