Using a Night Storage Urine BagWhen I had my urostomy surgery back at the end of 2017, I didn't know anyone who had a stoma. Everything was...reactions2comments
Cancer Positivity Can Isolate Those With Poor PrognosesA couple months after my first husband, Ahmad Khoshroo, was diagnosed with metastatic bladder cancer, I decided to go to a support...reactionscomments
Don’t Be Afraid To Keep Asking Until You Find the Right FormulaIt is helpful – as a bladder cancer patient or caregiver – to keep in mind the idea that the medical system’s...reactionscomments
The Answer to Your Question: Get a Second Opinion!I’ve been talking to and working with bladder cancer patients and caregivers for five years. I have been a caregiver myself and...reactionscomments
Metastatic Bladder Cancer When We Least Expected ItI lost my first husband to metastatic bladder cancer in 2014. That was after being told in 2011 that he had been...reactions2comments
What To Do When You Get The Worst Possible Bladder Cancer Diagnosis“The tumor board agreed unanimously that surgery is not an option,” the urologist told us. He didn’t make much eye contact so...reactions1comment
Which Visitors Represent the Patient During a Hospital Stay?The story in March that a Kaiser Permanente hospital in the San Francisco Bay Area used a telemedicine doctor to inform a...reactionscomments
Improving How We Search for Clinical TrialsWhen I first delved into learning about clinical trials for bladder cancer, I was under immense duress. The standard chemotherapy was not...reactionscomments
How Might a Surge of Coronavirus Patients Impact Access for Bladder Cancer Patients?I am in one of the epicenters of the coronavirus, the San Francisco Bay Area. The cruise ship with a coronavirus outbreak...reactionscomments
Bladder Cancer, Masculinity, and Driving in the SnowDriving in inclement weather is a challenge for anyone. You can never be sure of what is ahead of you. You are...reactionscomments
Laura's Bladder Cancer Story: Working and Traveling with 2 StomasThe Editorial Team at BladderCancer.net is highlighting people in the bladder cancer community. To kick it off, we talked to Laura who...reactions1comment
What Is the Culture Surrounding Bladder Cancer?As I became more deeply involved in bladder cancer patient advocacy, I read and heard a lot about the culture surrounding breast...reactionscomments
Living with No Evidence of DiseaseWhat happens when you are told, "Congratulations, you have no evidence of disease!"? Of course, you are elated, relieved, happy, and perhaps...reactionscomments
Your Questions? Answered! Hear From Bladder Cancer ResearchersInterested in hearing what experts have to say about bladder cancer treatments? We asked our Facebook community, "What questions do you have...reactionscomments
Living with No RegretsI accepted an invitation to interview for a maintenance manager position with the largest trucking company in the nation. The initial meeting...reactions1comment
Healthcare Obstacles & the LGBTQ+ CommunityEditor’s Note: LGBTQ+ stands for people who identify as lesbian, gay, bisexual, transgender, or queer. Have you or a loved one faced...reactionscomments
Big News on Valentine’s Day for Advanced Bladder Cancer PatientsYou could say 2020 delivered a sweet Valentine’s Day for bladder cancer patients. The American Society of Clinical Oncology (ASCO) held its...reactionscomments
The Luxury of HealthI’ve recently had some nerve pain in my hand that is likely to be carpal tunnel syndrome. It’s not that bad, very...reactionscomments
Advice to Your Past SelfLife with bladder cancer can take unexpected twists and turns. In many cases, your story may develop into something completely different than...reactionscomments
A Different View: Reflecting on How I Told My FamilyOur kids were teens when I was diagnosed. Decisions had to made about what and when to tell them about my cancer...reactionscomments
